ME/CFS
Mild → no benefitIll for 15 years
ME/CFS fatigue for 15 years, working with sick days, no improvement from diet cuts
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 15 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
15 years of fatigue, still no clue what the cause is
In context ↗ - At worst: Mild
I work full time, but need to take a lot of sick days and breaks during my work day.
In context ↗ - Now: No benefit
I have gotten used to living with it for the most part, but I find it really hard to work and have a social life.
In context ↗
Summary
Fatigue began at age 15 and has lasted about 15 years; she is 30 now. A fibromyalgia and chronic fatigue specialist found all blood tests normal and did not think she had CFS; cutting out gluten and dairy had no effect, and an at-home sleep apnoea test was negative. She works full time but takes many sick days and breaks, and finds work and a social life hard. Caffeine and nicotine pouches help only a very small amount.
Ask Miruvor AI
What they tried
Also tried
pacing (taking fewer classes, not pushing limits)· Helpedtherapy· Helpedcitalopram· Helped · wore offfluoxetine· Helpedcaffeine· Helpednicotine pouches· Helpedcutting out common allergens like gluten and dairy· No changecutting out common allergens like gluten and dairy· No changeBotox· No changeEMDR· Not said
Their words about each treatment
- pacing (taking fewer classes, not pushing limits) · Helped
It took me longer to finish my degree because I needed to take less classes each semester I found, but it was a lot easier to manage that way.
In context ↗ - therapy · Helped
I learned a lot in therapy and i genuinely think that it has helped a lot and my mental health has been fairly good.
In context ↗ - EMDR · Not said
I feel as though I have dealt with the event and have been able to come to terms with it and also did EMDR.
In context ↗ - citalopram · Helped
I also started taking citalopram when I was 15 for anxiety and depression ... the citalopram wasn't working as well
In context ↗ - fluoxetine · Helped
Since being on fluoxetine, my mental health has been pretty good.
In context ↗ - cutting out common allergens like gluten and dairy · No change
I, under his request, tried cutting out common allergens like gluten and dairy, but this had no effect.
In context ↗ - Botox · No change
TMJ (have gotten Botox for this, but didn’t see much improvement)
In context ↗ - caffeine · Helped
I rely a lot on caffeine and nicotine pouches, which I find only help a very small amount (but better than not having them).
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| age 15 | fatigue began at age 15My fatigue started when I was 15 years old and I am 30F now.In context ↗ | Not stated |
| 2026-10-08 | still fatigued after 15 years, cause not found, working full time with sick daysI have gotten used to living with it for the most part, but I find it really hard to work and have a social life.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Whenever I tried to push my limits I ended up failing or having an even harder time.
In context ↗ - Gut problems
acid reflux almost nightly ... mild constipation/bloating/hard time passing stool
In context ↗ - Pain & fibromyalgia
I have seen an ENT for my jaw pain and sinus infections.
In context ↗ - Sleep problems
as someone that has an extremely hard time getting up in the morning
In context ↗ - Anxiety & low mood
I also started taking citalopram when I was 15 for anxiety and depression
In context ↗