ME/CFS for over 15 years with pain, fatigue and crashes, now somewhat better with a drug
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 15 years
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
I've been ill for more than 15 years.
In context ↗ - Now: Somewhat better
I definitely find big improvements to daily life with it.
In context ↗
Summary
A person reported being ill for more than 15 years, with brief better periods that never lasted a year. They said ibuprofen helped pain and some fatigue but did not greatly affect crashes, and long-term use caused canker sores; celecoxib helped pain but worsened sores. In December 2023 they reported big improvements in daily life from a drug, more than any other medication or supplement, though no activity level was given.
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What they tried
What they credit
Also tried
Their words about each treatment
- Ibuprofen · Helped
I've found Ibuprofen helps me allot with discomfort in general. Mostly pain but definitely beyond.
In context ↗ - celecoxib(Celebrex) · Helped
I also like celecoxib(Celebrex) because it's effects last for 12 hours rather than 4.
In context ↗ - MDMA · Helped a lot
Personally, I definitely find big improvements to daily life with it. It's helped me more than any other medication/supplement ever has, by a ton.
In context ↗
Approaches: Other drugs and medicines
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | became ill; duration later given as more than 15 yearsI've been ill for more than 15 years.In context ↗ |
| 2023-11-25 | after more than 15 years ill, brief better periods never lasted a yearI've had some moments of doing somewhat better than before. But it's never lasted for more than a year.In context ↗ |
| 2023-12-03 | big improvements in daily life with MDMAI definitely find big improvements to daily life with it.In context ↗ |
Adverse events
- Ibuprofen (Advil, Nurofen, Motrin)“i was fine with it aside from canker sores that came and went” In context ↗ Side effects
- Celecoxib (Celebrex)“i find i get worse canker sores and more frequently with it” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I wouldn't call the impact on my crashes 'considerable' in my experience though.
In context ↗ - Pain & fibromyalgia
I've found Ibuprofen helps me allot with discomfort in general. Mostly pain
In context ↗
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