ME/CFS, somewhat better after Kampo medicine and stopping LDN
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
most of me/cfs patients receive Kampo therapy.It’s standard care. ... As for me,treatment targetting dampness made me much stronger
In context ↗ - Now: Somewhat better
Ultimately, I stopped taking it and am now able to live peacefully by utilizing other treatments and supplements.
In context ↗
Summary
A Japanese person with ME/CFS tried Kampo medicine for 'dampness' and became much stronger, even during typhoons. Low-dose naltrexone, tried twice over a year from 1.5 mg, worsened symptoms at any dose, exhausting cognition and the sympathetic nervous system; stopping it improved sleep and thinking. A self-taught Perrin Technique routine brought no significant improvement, and they now live peacefully using other treatments and supplements.
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What they tried
What they credit
Also tried
Their words about each treatment
- Kampo (treatment targetting dampness) · Helped a lot
As for me,treatment targetting dampness made me much stronger even when typhoon comes.
In context ↗ - LDN · Worse
It only makes my symptoms worse at any dose.
In context ↗ - Perrin Technique · No change
I did not see significant improvement in any respect, I discontinued this approach
In context ↗
Approaches: Alternative therapies
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2019-05-12 | Kampo treatment targeting dampness made them much strongertreatment targetting dampness made me much stronger even when typhoon comesIn context ↗ | Chinese herbal medicine (TCM formulas) |
| 2026-06-07 | low-dose naltrexone made symptoms worse at any dose over a year of trialsIt only makes my symptoms worse at any dose.In context ↗ | Low-dose naltrexone |
| 2026-06-07 | stopped LDN and lives peacefully using other treatments and supplementsUltimately, I stopped taking it and am now able to live peacefully by utilizing other treatments and supplements.In context ↗ |
Adverse events
- Low-dose naltrexone“It only makes my symptoms worse at any dose. ... Every time I stopped taking it, my condition would improve, and my sleep and cognitive function would begin to recover.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
LDN seemed to stimulate and exhaust my cognitive function and sympathetic nervous system.
In context ↗ - Sleep problems
my sleep and cognitive function would begin to recover
In context ↗ - Vision problems
gently pressing the back of the neck and the lymph nodes below the ears improve my vision symptoms
In context ↗
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