Miruvor
ME/CFS Severe → full recoveryIll for 10 years

Oda Shares Her POTS and ME/CFS Recovery After 10 Years Using ANS REWIRE

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
10 years
Published
Apr 2021

Summary

Oda's recovery combined daily thyroxine for diagnosed Hashimoto's hypothyroidism with the ANS REWIRE program (daily meditation and "postural rewiring" videos starting July 2017), gentle home yoga via the Yoga Studio app, one session of Thomas Hanna-method somatic experiencing, and cold water immersion -- swimming in the ocean in northern Norway, initially daily then scaled back to weekly. She had been ill for about 10 years from ages 14 to 24, worsening sharply around 18-19 with POTS onset, and by mid-2017 was couchbound and unable to work. Within three to four months she was "50 to 60 percent recovered" and no longer met the criteria for a CFS diagnosis at a specialist visit; by 12 months she called herself "fully recovered," and by 18 months said she had "never felt better" in her life, even compared to before she got sick. She reports the recovery has been sustained without relapse, now studying full-time and socially active with no return of tachycardia or fatigue.

Read it in their words

cfsunravelled.com — this page sells a treatment, program or service.

What they credit

Credits CBT & mindset, POTS medication, Alternative therapies, Brain retraining, Hormones & thyroid, Trauma & somatic work, Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust), Meditation, yoga, breathwork, PDE5 inhibitors (sildenafil, tadalafil), Thyroid (T3, T4, NDT).

Symptoms mentioned

Symptoms: POTS & dysautonomia.

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