Out of the 51 accounts with a clear outcome; 1 more don’t say how it went.
How it went
Did it last?
- 10 of 52 said the benefit wore off (including the 3 who relapsed).
- 4 of 52 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 11 | 22% |
| Near-full | 5 | 10% |
| Substantial | 17 | 33% |
| Partial | 14 | 27% |
| Relapsed | 3 | 6% |
| No benefit | 1 | 2% |
| Outcome unclear | 1 | — |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 5 | 20% | |
| Severe | 26 | 38% | |
| Very severe | 5 | 20% |
16 accounts don’t say how ill the person was.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- Thyroid (T3, T4, NDT)33 accounts
30% 24%
- Hydrocortisone / cortisol12 accounts
17% 17%
- B12 injections and methylation10 accounts
20% 20%
- Selenium, iodine, minerals9 accounts
22% 0%
- Sex hormones (progesterone, estrogen, HCG)9 accounts
22% 0%
- Elimination and ketogenic diets8 accounts
38% 12%
- Carnitine, BCAA, amino acids7 accounts
29% 14%
- Herbal and Chinese medicine6 accounts
33% 17%
- Vitamin D and sun exposure6 accounts
33% 0%
- Low-dose naltrexone5 accounts
40% 20%
- Testosterone5 accounts
40% 0%
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)5 accounts
80% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 52 accounts
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Has anyone achieved remission or recovery from treatment by any doctor?
Took 25mg of spironolactone plus 4.5mg of low-dose naltrexone (LDN), while already on physiologic cortisol replacement for non-functioning adrenals, following the approach from the Campo and Taylor 2021 clinical trial. The page does not state how long they…
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Primal Trust testimonials: Anne Katrine
Anne Katrine used the Primal Trust Regulate program, though its exact length isn't specified, for post-COVID symptoms of unstated duration. She reports her symptoms resolved to the point she can eat anything without triggering them, she now exercises daily…
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ME/CFS patient substantially improved with spironolactone 100 mg daily
Poster combined spironolactone 25mg/day with LDN, a GLP-1 agonist and NP thyroid and states plainly "My CFS is cured, yes cured...my health is amazing," while noting he still needs cortisol supplementation. Because several drugs were changed together it is…
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176: Dr. Scott Resnick, MD: The #1 Hormone Driving ME/CFS & Chronic Symptoms
Credits hormonal and endocrine. Scott had ME/CFS and is listed among the recovery accounts. Endocrine-focused expert, not a personal story.
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How I got in remission/cured my ME/CFS
Ali_Mardiyev, disabled for 1.5 years with POTS/dysautonomia/severe fatigue/PEM, layered a stellate ganglion block with beta-blocker, a testosterone course, several psychiatric medications, intermittent fasting and a slow graded-exercise ramp starting April…
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Testosterone resolves fatigue and inflammation
This poster credits testosterone, added on top of ongoing antiviral treatment, with improving energy, recovery and joint pain, calling it icing on the cake and naming it one of his three essential treatments alongside an antiviral and a sleep aid. Dose and…
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Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors.…
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Dr. Thomas Levy -- How COVID Helped Me Regain Good Health
Took low-dose hydrocortisone at 20mg/day for over 20 years of ME/CFS, raising it to 30-35mg/day during a COVID infection, and added liposome-encapsulated vitamin C at 3-10g/day after reading a book pairing the two. Describes moving from roughly 4% function…
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Substantial improvement with strange dietary adjustments
Wonkmonk built a highly specific elimination/adjustment diet after years of downhill CFS. He says he moved from borderline "very severe" to the lower end of "severe" - pain almost gone, able to get up, cook, and walk a few miles - and calls it "very…
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Oda Shares Her POTS and ME/CFS Recovery After 10 Years Using ANS REWIRE
Oda's recovery combined daily thyroxine for diagnosed Hashimoto's hypothyroidism with the ANS REWIRE program (daily meditation and "postural rewiring" videos starting July 2017), gentle home yoga via the Yoga Studio app, one session of Thomas Hanna-method…
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I finally fixed post-COVID fatigue
D.Rabbie says a combination of the vasoactive drug heptaminol with cinnarizine, and later with modafinil, gave him "better energy and mental clarity" that he felt exceeded his pre-COVID baseline, after two to three months of unresolving post-COVID fatigue…
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I replace ALL my hormones. This brought me back to life.
thingsvarious systematically replaced testosterone, cortisol, thyroid, growth hormone and aldosterone after years of "nightmare"-level fatigue, largely managing it himself because, in his words, "many endocrinologists are shit." He says his energy moved from…
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I replace ALL my hormones (SilverRose88)
SilverRose88, ill since adolescence and previously bedbound, says hydrocortisone, now 15mg down from 25mg, plus 75mcg of thyroxine got her from being bedbound to being able to be upright. She remains largely limited and expects lifelong hydrocortisone,…
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List of ME/CFS Recovery and Improvement Stories
superboreduniverse is listed moving from severe to mild ME/CFS on high-dose progesterone, maintained at a lower dose long-term; the same entry separately notes she had a 4-year full remission during a pregnancy, suggesting a hormonal link but two different…
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Good reaction to Cellfood - may be oxygenating the body, helping immune system, apparently boosted thyroid, now helping stroke patient
Tried Cellfood mineral/enzyme drops after 22 years of ME/CFS marked by recurrent weeks-long sinus infections, starting at 4-5 drops a day and working up over about six weeks to 8-10 drops three times daily. Reports a sinus infection clearing within three…
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Adrienne Dellwo Shares Her Fibromyalgia Remission Story
Adrienne Dellwo's regimen included low-dose naltrexone at 3mg (compounded, versus a standard 30mg dose per the article), plus rhodiola rosea, L-theanine, vitamin B and D, a custom herbal blend and acupuncture from her rheumatologist, meditation, yoga, a…
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Selenium working for me
Three days into selenium 150mg/day plus zinc, reports a "drastic improvement in my overall energy" and shrinking of longstanding swollen lymph nodes. Posted very early in the trial, mechanism still unclear to her (she was seeking thyroid testing to…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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How I recovered.
Combined a multi-part protocol -- twelve $325 Oxford "homeostasis" peptide shots starting September 2013, a rotary diversified (Theron Randolph) elimination diet, vitamin D, low-dose naltrexone, Remeron, the Gupta amygdala-retraining program, and removing…
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My CFS Recovery
Jocelyn became severely ill with CFS more than 25 years before writing, at one point nearly bedridden for over a year with fatigue, muscle and joint aches, brain fog and near-fainting. Intravenous vitamin therapy and dietary change first let her work and…
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Diet makes the biggest difference for Alexandra
Alexandra, a 26-year-old nurse when she first fell ill after flu, recovered initially but then relapsed severely for seven years, becoming mostly home- and bed-bound. She tried amitriptyline, which eventually made things worse, and used the mind-body…
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how did you get out of "bedridden level" ??(even if you are still sick)
After roughly two years bedridden, this poster gradually stayed out of bed longer using a very restrictive diet, mineral/amino-acid supplementation and lifestyle changes, with hydrocortisone accelerating progress further; she notes in hindsight she hadn't…
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My CFS/ME was GHD
After years of what had been labeled CFS/ME, awkwardlymodern was diagnosed with growth hormone deficiency and says one month of replacement-dose GH therapy returned her to a normal energy level, with cognitive and mood improvement almost immediate and…
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Methylation: From feeling FANTASTIC back to Square One
Took a high-dose B12 protocol and reports it left her hypothyroid after "spending too much energy" on the high doses. Whatever initial benefit there was did not sustain, and she was left addressing a new thyroid problem instead — the treatment causing harm…
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Going Under the Knife Does It
Diane had sinus surgery, along with herbs, nutritional supplements, hormone supplements, and "serious meditation"; IVIG was also tried but had no effect. None of these interventions are given specific names, doses, or durations. She fell ill in her mid-30s…
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Eight Years of ME/CFS Disappears in Two Hours
Joy lived with ME/CFS for eight years despite normal thyroid readings on standard tests, until additional T3 testing showed her body was not converting T4 into active T3. Starting thyroxine and Tetroxin to correct this reportedly resolved her symptoms…
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Monique finds her rocket fuel
Monique, previously athletic, developed ME/CFS after flu and worsened dramatically after her father's death, by 2004 hardly able to walk and fearing a wheelchair. She pursued an orthomolecular approach, describing two supplements as like rocket fuel,…
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Sleep Cycle Inversion (Awake At Night, Sleeping During Day): A Simple Technique Fixed This For Me
For years of severe middle-of-the-night insomnia, built an evening stack of 3mg sublingual Natrol melatonin, 500mg niacin with dinner (300mg more if woken at night), 100mg 5-HTP, 100mg L-theanine, magnesium glycinate, a calcium tablet, Seriphos for cortisol,…
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Combination of Supplements Allows Me to Work and Exercise - But causes extreme Gastritis
Built a roughly 60-item daily supplement stack (B12, NADH, high-dose antioxidants/glutathione, SAM-e, CoQ10, glandulars, ribose, phosphatidylserine and more) over three-plus years of trial and error for CFS, fibromyalgia and Hashimoto's. Says the combination…
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Methylation recovery survey. Recovery stories here!!
Followed a "Yasko lite" methylation protocol blending Rich Van Konynenburg/Freddd/Ben Lynch approaches for about 1.5 years, including methylcobalamin, adenosylcobalamin, potassium, magnesium, molybdenum and methylfolate. She discontinued long-term antifungal…
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The Woman Who Healed Chronic Fatigue Syndrome Naturally
Edie used a wide-ranging natural protocol: topical arnica gel, papaya and devil's claw for inflammation, Cell Food (a liquid oxygen supplement), homeopathic thyroid, adrenal, hypothalamus and pituitary remedies, spirulina, herbal melatonin and 5-HTP for…
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Tyrosine (L-Tyrosine) by NOW helping me! Would love input. (long)
With lab-documented low catecholamines and low morning cortisol, this poster settled on a half-dose of L-tyrosine after full doses caused jitteriness, reporting an ongoing mild mood lift - "feel a bit happy on it" - without the energizing effect he initially…
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CURED CFS/ME? PLEASE SHARE YOUR STORY HERE.
Unable to work or grocery-shop for about ten years, this poster describes roughly eight years of intensive rest combined with Armour thyroid, herbal hormone support, magnesium and low-dose Effexor, after which she functioned normally for over sixteen years -…
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Natural Dessicated helped alot...at first!
With longstanding physical signs of hypothyroidism (no outer eyebrows, absent nail half-moons, swollen indented tongue, central weight gain, moon face - self-described as "the poster child for hypothyroidism for many years"), she started natural desiccated…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After lifelong gastrointestinal problems, she spent about a year working up to a full dose of a Metafolin-containing B-complex alongside a gluten-free diet. She reports "doing a lot better now," with normal T3 thyroid levels "for the first time ever" and…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After 13+ years of CFS that left her unable to walk well, she added transdermal cyanocobalamin spray and methylcobalamin/methylfolate to her regimen and reported "the first time in over 13 years that my energy has really come back," with markedly improved…
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Has anyone on this site cured him or herself of CFS/ME? Did I?
Used a mix of doxycycline (which finally knocked out a persistent fever), roughly 20 doses of dexamethasone borrowed from a friend (temporary but "phenomenal" relief), Isocort, daily hydrocortisone gel, raw herbal teas, green powders, methylation support,…
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what seems likely to have improved my gut?
After years of gut pain following nearly every meal, he built up a broad supplement stack and reports his gut pain "starting to improve dramatically in the past week," on top of an earlier partial improvement within the first week of starting magnesium. The…
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specific type of digestive enzyme has helped a lot
After four years on hydrocortisone for POTS-related symptoms, she began taking four Renew Life Digest More Ultra digestive enzyme capsules with each meal. She was then able to wean her hydrocortisone from 25mg to 12.5mg without her usual dizzy spells, and…
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Feeling generally better
Thirty years after a mono-triggered onset that left her housebound, unable to drive or cook, with severe vertigo and depression, she layered years of high-dose Famvir and Acyclovir and about two years of Mycoplasma antibiotics with, more recently, roughly…
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Tests coming in from Dr. Bradstreet
On ongoing GcMAF injections (plus an added antiviral, Cytomil, and a new antiviral regimen on Dr Bradstreet's recommendation) after 5 years of relapsing illness, including bouts "couch bound for months at a time." Bradstreet reviewed her labs (showing…
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progess report..feeling almost normal
About 1.5 years into severe illness (bedridden, lightheaded, shaking, forced to leave her home), she combined cholestyramine and Valtrex for 4 months, methylB12 injections tapering from daily to every other day over 4 months, plus ongoing sublingual…
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Vasopressin/ADH ... My Story
Added low-dose vasopressin (half pill twice daily) on top of thyroid medication, cortisol, aldosterone, testosterone and DHEA. Says he stopped over-urinating (previously about twice the volume he drank), fatigue improved, and his bench press rose sharply…
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Cured Myself After 4 Years of CFS
Over about four years and more than $50,000 on doctors and supplements, this poster went from lying "almost paralyzed" to calling himself cured, crediting a stack that included DHEA (100mg/day, 200mg on exercise days), Florinef for low aldosterone,…
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Improving steadily on Regimen, added hormones to the list
Runs a large daily regimen -- sodium ascorbate, glycine, lysine and proline at 2-5g per meal, 40,000 IU beta carotene per meal, Lugol's iodine, malic acid, DHEA, pregnenolone, weekly minerals/B vitamins, plus Tindamax and Benicar -- along with periodic…
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Some things that have helped me
A ten-month combination of Lugol's iodine, desiccated thyroid, an elimination diet, monthly liver flushes and an antiparasitic herbal mix brought "much more energy and much less pain" after 9.5 years of CFS/fibromyalgia, with symptoms shifting within a day…
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Gut healing - what seems to be helping me
After about 8 years of illness, 9 months of drinking raw-milk kefir resolved her multiple chemical sensitivity ("no longer feel like I'm choking" around perfume), completely cleared longstanding hand eczema, let her cut thyroid medication from 225mcg to…
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Hormones: Some women go into remission during pregnancy, can we recreate w hormones?
Used a high-dose estriol cream (6-8mg/day) and says it was "like a miracle for me when I started it," giving dramatic relief from nervous-system symptoms, POTS and depression. The effect later stopped working after she changed her thyroid medication, so the…
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What treatment has worked for you?
Took Famvir and Cycloferon alongside rotating sleep medications and adrenal hormone support, adjusted based on ongoing lab testing. Describes "an improvement and still improving" as he tweaks the regimen, explicitly calling it "not a cure but an…
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What worked for me
After 8+ years on Humira, Enbrel, Methotrexate and cortisol shots, switched to desiccated thyroid hormone (Armour, later Erfa) starting in 2003. Says her pain "disappeared," fatigue became "much much better," previous bone density decline reversed, and food…
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John Bochenek's Recovery Story
Relayed by forum member sometexan84, John Bochenek credited full recovery from ME/CFS to a hormonal protocol of testosterone with anastrozole plus cinnamon/chromium and L-lysine. The original ProHealth article could not be fetched directly (it returned only…
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Recovery from CFS: 50 Personal Stories
This page is a description of the book "Recovery from CFS: 50 Personal Stories," edited by Alexandra Barton, for which Jacob Teitelbaum — Medical Director of the Fibromyalgia and Fatigue Centers and himself a former CFS patient as a medical student — wrote…