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Long COVID Moderate → relapsedIll 6 months before improving or writing

Long COVID brain fog and panic attacks; SSRI and diet helped, then brain fog returned

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
6 months
Last post
Jun 2021
In their words
  • Condition: Long COVID25F and 6 month long hauler In context ↗
  • At worst: ModerateDebilitating brain fog and fatigue since January In context ↗
  • Now: RelapsedI thought I was finally rid of the brain fog throughout March but it’s come back for for the past 4 weeks now. In context ↗
  • Began after: COVIDI’m a 25 yr active female who tested positive in Nov, only had fever, no hospitalization needed. In context ↗
Read from 16 of their posts and comments; links to the 10 this page draws on

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Summary

Courtney, 25, tested positive for COVID in November 2020; panic attacks began at Christmas, and from January 2021 she had debilitating brain fog and fatigue. An SSRI eased the panic attacks and a strict anti-inflammatory diet made the brain-fog pain bearable; brain fog lifted through March, then returned for four weeks. Six months in, after a second Moderna dose, she still had brain fog, though it was less intense one day.

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What they tried

Their words about each treatment
  • Motrin · HelpedI’ve been taking Motrin daily since it’s an inflammatory agent In context ↗
  • ice packs · HelpedThat was the only way I could fall asleep for even 1 hour. In context ↗
  • SSRI · HelpedI started an SSRI after dealing with the constant attacks and delusions 1 month straight and the SSRI has truly helped me. In context ↗
  • stopping vaping · Not saidI stopped vaping, incorporated a strict anti-inflammatory diet In context ↗
  • vitamins · Not saidI started taking more vitamins, having a anti-inflammatory diet In context ↗
  • strict anti-inflammatory diet · Helpedthe decision to have a strict anti-inflammatory diet this past week has already made the pain bearable In context ↗
  • Tylenol, Advil · No changeTylenol, Advil etc doesn’t make it go away. In context ↗
  • Moderna vaccine · HelpedAt first I thought it made my brain fog go away (3 days with no fog) but then it returned In context ↗

Approaches: Diet · Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
Nov 2020COVID-19 infection, fever for two daysI’m a 25 yr active female who tested positive in Nov, only had fever, no hospitalization needed. In context ↗Mild
January 2021debilitating brain fog, fatigue and panic attacksDebilitating brain fog and fatigue since January. In context ↗Moderate
early February 2021SSRI eased panic attacks and delusionsI started an SSRI that has helped (brain fog is still here) In context ↗ModerateAntidepressants (unspecified)
March 2021strict anti-inflammatory diet made brain-fog pain bearable and brain fog lifted through Marchthe decision to have a strict anti-inflammatory diet this past week has already made the pain bearable In context ↗MildAnti-inflammatory diet
May 2021brain fog returned for four weeks, crying in bed from the painI thought I was finally rid of the brain fog throughout March but it’s come back for for the past 4 weeks now. In context ↗Moderate
2021-06-03brain fog still present but less intense after second Moderna dosestill have brain fog but today is not as intense as yesterday In context ↗Mild

Adverse events

  • COVID vaccination as treatment“Overcame the fever and fatigue yesterday but today am feeling heaviness in my chest and strong pressure in my ears.. I did not have this ear symptom when I had covid or during my long haul journey” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Brain fogstill have brain fog but today is not as intense as yesterday In context ↗
  • Post-exertional malaiseI can’t do physical activity anymore (hot yoga, aerial arts) because it seems to aggravate it more In context ↗
  • Anxiety & low moodStarted panic attacks on Christmas (never had one before) In context ↗
  • Sleep problemsI do have issues sleeping still In context ↗
  • Headaches & migraineIt just feels like my brain is swollen constantly until I just start crying from the pain. In context ↗
  • Temperature regulationI only had a fever the first 2 days In context ↗
  • POTS & dysautonomiahyperactive autonomic nervous system for 5 months now In context ↗

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