Bedridden five months with long COVID, somewhat better with LDN and psilocybin
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I was bed ridden for 5 months with sensory crap
In context ↗ - At worst: Severe
I was bed ridden for 5 months with sensory crap
In context ↗ - Now: Somewhat better
and started low dose Neltrexone and it’s manageable now
In context ↗
Summary
They were bedridden for five months with sensory issues before low-dose naltrexone made it manageable. They later developed thoracic outlet syndrome with vision and balance problems, and botox gave two or three good days before new vision trouble. Psilocybin was a huge benefit, and they named LDN, THC and CBD as what helped most.
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What they tried
What they credit
Also tried
Their words about each treatment
- LDN / low dose Neltrexone · Helped a lot
I was bed ridden for 5 months with sensory crap and started low dose Neltrexone and it’s manageable now
In context ↗ - THC/CBD · Helped
LDN THC/CBD hands down
In context ↗ - botox shots · Helped
Received botox shots 3 weeks ago and had 2-3 glorious days but now am having other vision issues
In context ↗ - psilocybin · Helped a lot
psilocybin was a huge benefit for me
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | bedridden for five months with sensory intoleranceI was bed ridden for 5 months with sensory crapIn context ↗ | Severe | |
| — | illness became manageablestarted low dose Neltrexone and it’s manageable nowIn context ↗ | Moderate | Low-dose naltrexone |
| about 3 weeks before 2026-09-03 | botox gave a few good days then new vision issuesReceived botox shots 3 weeks ago and had 2-3 glorious days but now am having other vision issuesIn context ↗ | Moderate | |
| 2026-09-03 | psilocybin a huge benefit; LDN, THC and CBD named as most helpfulpsilocybin was a huge benefit for meIn context ↗ | Moderate |
Adverse events
- Botox (botulinum toxin)“Received botox shots 3 weeks ago and had 2-3 glorious days but now am having other vision issues” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
bed ridden for 5 months with sensory crap
In context ↗ - Vision problems
now am having other vision issues
In context ↗ - POTS & dysautonomia
made gabe me vision and balance issues
In context ↗
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