Long COVID, lost use of right leg and unable to turn head, much better with diet and LDN
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2025
In their words
- Condition: Long COVID
I'm a male with heds and long covid.
In context ↗ - At worst: Moderate
At one point I lost use of my right leg for about 6 months. Prior to that I couldn't turn my head or look down.
In context ↗ - Now: Much better
I seem to have gotten about 80% symptoms relief with diet, exercise, hydroxyqlouriquine, ldn, gabaoentin and cannabis.
In context ↗ - Began after: COVID
I think the combo of having long covid prior to being vaxed played a role in symptoms.
In context ↗
Read from 18 of their posts and comments; links to the 14 this page draws on
Summary
A man with long COVID, hEDS and rheumatoid arthritis, he lost use of his right leg for six months and could not turn his head at his worst. COVID vaccination and boosters made everything worse. By September 2024 he reported about 80% symptom relief from diet, exercise, hydroxychloroquine, LDN, gabapentin and cannabis, sleeping better without pills and about to start a job, though PEM and arthritis flares continued.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Methylene blue · Helped
Methylene blue (there's a whole dosing guide) it's just blue food dye but helps
In context ↗ - Cordycep mushrooms · Helped
also try Cordycep mushrooms (found a copd group that mentioned this and holy shit game changer)
In context ↗ - aquatherapy, short walks, weight lifting · Helped
I started with aquatherapy then short walks then progressed up to weight lifting. Up to 3 days a week.
In context ↗ - cannabis · Helped
it helps with some of the inflammation, I can slow my mind down at times
In context ↗ - TRT · Helped
Getting on TRT changing my diet has helped with some of the fatigue.
In context ↗ - SSRI · Worse
Genetically I only get side effects from ssri.
In context ↗ - microdosing mushrooms · Helped a lot
My biggest symptom relief came post microdosing mushrooms.
In context ↗ - LDN · Helped
I'm taking ldn currently for inflammation.
In context ↗ - COVID vaccine · Worse
Got the first fucking 3 and jesus it made everything worse.
In context ↗ - methylated B vitamins · Helped
The muscle twitching went away after taking methylated B vitamins.
In context ↗ - hydroxyqlouriquine · Helped
I seem to have gotten about 80% symptoms relief with diet, exercise, hydroxyqlouriquine, ldn, gabaoentin and cannabis.
In context ↗ - xyzal · Helped
daily xyzal after using hydroxyzine to knock the histamine down
In context ↗ - hydroxyzine · Helped
My hydroxyzine protocol (not reccomendded by my dr but it works.) Start with 50mg then reduce by 10mg for the next 5 days.
In context ↗ - ritilan · Helped
I had to open the capsule and make 2.5mg doses with empty capsules. It's enough to focus with doing a full blown flare.
In context ↗
Approaches: Other drugs and medicines · Physiotherapy and rehab · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | COVID-19 leading to long COVIDI think the combo of having long covid prior to being vaxed played a role in symptoms.In context ↗ | Not stated | |
| — | lost use of right leg for six months; could not turn head or look downAt one point I lost use of my right leg for about 6 months. Prior to that I couldn't turn my head or look down.In context ↗ | Moderate | |
| — | vaccination and booster worsened everything, dragged leg for five monthsGot the first fucking 3 and jesus it made everything worse.In context ↗ | Moderate | |
| 2024-07-11 | built up from aquatherapy to walks to weight lifting three times a weekI started with aquatherapy then short walks then progressed up to weight lifting. Up to 3 days a week.In context ↗ | Mild | Graded rehab and self-made programmes |
| 2024-09-07 | about 80% symptom relief, sleeping better without pills, about to start a jobI seem to have gotten about 80% symptoms relief with diet, exercise, hydroxyqlouriquine, ldn, gabaoentin and cannabis. ... About to start a job.In context ↗ | Mild | Low-dose naltrexone |
| 2025-04-11 | full blown flare from low-dose RitalinI've done it with 10mg ritilan. I had to open the capsule and make 2.5mg doses with empty capsules. It's enough to focus with doing a full blown flare.In context ↗ | Mild |
Adverse events
- Antidepressants (unspecified)“Genetically I only get side effects from ssri.” In context ↗ Side effects
- Antidepressants (unspecified)“Gave me this internal tremors and I had to stop it. They said it's because the disease was to low.” In context ↗ Side effects
- COVID vaccination as treatment“somepeople the vax gave stroke like symptoms too after having covid then getting vaxed. I was one of them dragged my leg for like 5 months.” In context ↗ Side effects
- COVID vaccination as treatment“Got the first fucking 3 and jesus it made everything worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
still get pem and ra flares that's put me down
In context ↗ - Brain fog
My biggest symptom relief came post microdosing mushrooms. I could sleep with cannabis for 8 hours. Pain was minimal, energy and no brain fog.
In context ↗ - Sleep problems
Sleeping a good bit better without sleeping pills.
In context ↗ - Pain & fibromyalgia
Pain was minimal
In context ↗ - Neuropathy & tingling
Random light numbness in limbs, random light numbness in my face.
In context ↗ - Muscle weakness
At one point I lost use of my right leg for about 6 months.
In context ↗ - POTS & dysautonomia
I'm positive my dysautonomia symptoms are from too much norepinephrine
In context ↗ - Mast cell (MCAS) & allergies
It helps if you can manage your mcas issues too.
In context ↗
Ask Miruvor AI
Similar stories
-
Bedbound with long COVID, now about 75% better with microdosing mushrooms and diet
A US truck driver who caught COVID in February 2020 developed long COVID with dysautonomia, constant pain, muscle wasting and insomnia, and was bedbound from September 2022 to April 2023 after a reinfection. Microdosing mushrooms for three months, plus a…
-
Just shy of bedbound with ME/CFS, now much better with pacing and low-dose naltrexone
Disabled by a March 2020 COVID infection and a 2021 reinfection, they spent over a year just shy of bedbound with ME/CFS, hyperadrenergic POTS and slow digestion. They credited pacing and radical rest, low-dose naltrexone, THC and therapy for slowly climbing…
-
Housebound and in a wheelchair with long COVID, much better after leaving mould and Xolair
Bramble 45719 fell ill with long COVID in January 2022 and was housebound and in a wheelchair for months, with PEM, GI and mast-cell problems. A prednisone course briefly restored walking but faded; LDN, cannabis, fasting and a carnivore diet helped him…
-
Bedbound with long COVID, now much better after two doses of Anktiva
Ridge 59905 got COVID in 2020 and was mildly ill for four years until a crash after returning to the gym left them bedbound. A Giardia infection and a further crash from December 2025 worsened things. Two doses of Anktiva in a summer 2026 trial resolved…