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Long COVID Severe → somewhat betterIll 5 years before improving or writing

Long COVID: hardly able to walk and mostly in bed, now somewhat better

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
5 years
Last post
Apr 2026
In their words
  • Condition: Long COVIDI’m going on my 5th year of long covid. In context ↗
  • At worst: SevereFor a while I could hardly even walk. It kept me in bed and when I was not in bed, I was needing to use a walker or wheelchair. In context ↗
  • Now: Somewhat betterIt’s gotten much better, but it still flares up if I do too much (which usually isn’t a lot). In context ↗
  • Began after: COVIDI’m going on my 5th year of long covid. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Writing in April 2026, in the fifth year of long COVID, this Reddit user described weak and sore legs as one of their most persistent symptoms. For a while they could hardly walk, were in bed much of the time and needed a walker or wheelchair when not in bed. The legs have improved considerably but still flare up when they do too much, which is not a lot, and they have never gotten direct answers about the cause.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetlong COVID beganI’m going on my 5th year of long covid. In context ↗Not stated
—could hardly walk; in bed most of the time, walker or wheelchairFor a while I could hardly even walk. It kept me in bed and when I was not in bed, I was needing to use a walker or wheelchair. In context ↗Severe
2026-04-18legs much better but still flare after doing too muchIt’s gotten much better, but it still flares up if I do too much (which usually isn’t a lot). In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessHaving weak and sore legs has been one of the most persistent symptoms for me. In context ↗
  • Post-exertional malaisestill flares up if I do too much (which usually isn’t a lot) In context ↗

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