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Long COVID Outcome unclear

Long COVID crash mode all the time, trying Visible app and a PEM tracker

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Oct 2024
In their words
  • Condition: Long COVIDI seem to be in crash mode all the time these days (LTD denied, working on appeal, hard with cognitive impairment, and stressful) In context ↗
  • At worst: ModerateI seem to be in crash mode all the time these days ... hard with cognitive impairment In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Pelican 77767, posting in a long-COVID forum, described being in crash mode all the time, with cognitive impairment and a stressful disability appeal. They used the free Visible app for several months, stopped because the data seemed poor, then restarted and tracked only four symptoms, which brought the morning stability score closer to how they felt. They also saw sense in adding a PEM tracker to reserve “crash” for the worst days.

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What they tried

Also tried

Their words about each treatment
  • Visible · Not saidI used the free app for several months and got frustrated because it didn’t seem to be giving me good data. Recently I started again, and I switched from tracking several symptoms to only my worst and most consistent four, and now the “morning stability score” and how crummy I actually feel seem to be closer together. In context ↗

Symptoms mentioned

Their words about their symptoms

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