Long COVID
Mild → near normalIll 3 years before improving or writing
Long COVID with POTS and panic, rarely out, now 90% healed, crediting walking and prayer
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
I suffered from a milder LC for about a year (got Covid January 2023, started feeling better December 2023)
In context ↗ - At worst: Mild
Obviously it was very difficult to work, be a mom, and do normal things when all of these symptoms got in the way.
In context ↗ - Now: Near normal
90% healed after 2 years 10 months ... I still have the occasional skipped beat (heart PVC).
In context ↗ - Began after: COVID
After I had a mild Covid case in January 2023, I started feeling LC symptoms about 3 weeks later after recovery.
In context ↗ - Says they never had: Post-exertional malaise
I’ve heard of PEM, but I don’t get that
Read from 48 of their posts and comments; links to the 18 this page draws on
Summary
After COVID in January 2023 she developed long COVID with panic attacks, POTS, tinnitus, visual static and food intolerances, rarely leaving home except for work. She improved gradually over two years, crediting walking, prayer, diet, sleep and stress reduction, though a 2024 reinfection brought some symptoms back; pregnancy brought rapid relief from about 20 weeks. By late 2025 she rated herself 90% healed, walking 10,000 steps, though occasional skipped beats, tinnitus, visual static, food intolerances and post-exertional anxiety remained.
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What they tried
What they credit
Also tried
cutting out toxic people / stress· Helpedsleep meditation or prayers on YouTube· Helpednot consuming long covid content· Helpedvitamin D supplements and sunlight· Worseketo· Worsefasting· Worsenicotine· Worseerythritol / artificial sweeteners· Much worsedaily electrolytes (mag, sodium, potassium)· Not saiddaily electrolytes (mag, sodium, potassium)· Not saiddaily electrolytes (mag, sodium, potassium)· Not said
Their words about each treatment
- erythritol / artificial sweeteners · Much worse
I started using erythritol and I woke up with the MOST SEVERE DIZZINESS OF MY LIFE
In context ↗ - vitamin D supplements and sunlight · Worse
I started noticing that I got antsy and jittery after Vit D
In context ↗ - keto · Worse
I tried keto and it made my symptoms worse.
In context ↗ - daily electrolytes (mag, sodium, potassium) · Not said
was taking daily electrolytes that I ordered from Amazon
In context ↗ - fasting · Worse
Tried fasting. Was absolutely horrific for me.
In context ↗ - gradually moving / walking · Helped a lot
This worked wonders for me. This took two years but now I’m walking up to 10k steps or more per day with no reactions.
In context ↗ - resting and not overexerting · Helped
Resting is what helped mostly and not overexerting myself and also avoiding stress.
In context ↗ - slowly reintroducing foods · Helped
Slowly reintroduced different foods and now I don’t react to them anymore. Took a few months
In context ↗ - nicotine · Worse
I also stopped using nicotine. I know some people say it helps them, but I think it made me worse personally.
In context ↗ - praying · Helped a lot
I started praying. ... this worked a miracle for me, literally.
In context ↗ - changed my diet completely · Helped a lot
Changed my diet COMPLETELY. I mean no seed oils, no processed foods. Absolutely NOTHING containing gluten.
In context ↗ - prioritizing sleep · Helped
Prioritized sleep. I went to bed early AF every day, at like 7pm or 8pm.
In context ↗ - cutting out toxic people / stress · Helped
Cut out all toxic people and anyone or anything that caused me problems.
In context ↗ - sleep meditation or prayers on YouTube · Helped
I listened to sleep meditation or prayers on YouTube and that’s helped me a lot.
In context ↗ - not consuming long covid content · Helped
I found that not consuming long covid content helped me with my own healing journey.
In context ↗
Approaches: Alternative therapies · Diet · Pacing · Physiotherapy and rehab · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2023 | COVID, then long COVID symptoms about 3 weeks laterAfter I had a mild Covid case in January 2023, I started feeling LC symptoms about 3 weeks later after recovery.In context ↗ | Mild | |
| early 2023 | daily panic attacks, agoraphobia, rarely left home except for workI used to wake up heart racing with that damn internal buzzing and I would freak tf out. Almost daily panic attacks.In context ↗ | Mild | |
| October 2023 | starting to feel a little better, could eat more foodsIt’s been like 10 months and I’m starting to feel a little better like I can eat more foods than before without a reaction.In context ↗ | Mild | |
| February 2024 | crashed after a COVID reinfection; symptoms returnedsome of my symptoms have returned (anxiety, PPPD, PVCs, palpitations, GERD, food allergies, etc.)In context ↗ | Mild | |
| September 2024 | a lot better with rest and avoiding stressIm doing a lot better. I still have some symptoms like tinnitus and visual staticIn context ↗ | Mild | Pacing and the energy envelope |
| March 2025 | working full time, short walks, pregnant and healingI’m 2 years and 4 months in, can work full time, go on 20-30 min walks, but I can’t do any exercise that brings my heart rate up.In context ↗ | Mild | |
| October 2025 | 90% healed; walking 10k steps and working out twice a dayThis took two years but now I’m walking up to 10k steps or more per day with no reactions.In context ↗ | Near normal | Graded rehab and self-made programmes |
| July 2026 | still some visual static and faint tinnitus, otherwise much betterOh i still have this but i learned to live with it. I also have a very faint tinnitus still. But these symptoms are nothing compared to the other stuffIn context ↗ | Near normal |
Adverse events
- “I started using erythritol and I woke up with the MOST SEVERE DIZZINESS OF MY LIFE, like literally room spinning like I was super drunk. I ended up in the ER.” In context ↗ Side effects
- “All other fake sugars make me extremely sick and make my anxiety come back with a vengeance.” In context ↗ Made symptoms worse
- Vitamin D and sun exposure“I started noticing that I got antsy and jittery after Vit D” In context ↗ Side effects
- Keto and low-carb diets“I get the worst heart palpitations while on keto, even when taking electrolytes. ... my heart stuff gets pretty bad on keto” Heart rhythm problems
- Keto and low-carb diets“It also gives me anxiety, insomnia, and agitation when I do keto.” In context ↗ Mood or psychiatric effects
- Keto and low-carb diets“All night I would get this waves of “WAKE UP” (adrenaline or something?) and couldn’t sleep.” In context ↗ Insomnia from treatment
- Keto and low-carb diets“I would be very pissy and upset all day long.” In context ↗ Mood or psychiatric effects
- Keto and low-carb diets“I tried keto and it made my symptoms worse.” In context ↗ Made symptoms worse
- Intermittent fasting“Tried fasting. Was absolutely horrific for me. Extreme shakiness, rapid heart rate, heart palpitations, anxiety and panic. Will not try again” In context ↗ Made symptoms worse
- Nicotine patches“I also stopped using nicotine. I know some people say it helps them, but I think it made me worse personally.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodGut problemsHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomiaSleep problemsTemperature regulationTinnitusVision problems
Their words about their symptoms
- Anxiety & low mood
the first sign I had long covid was this extreme level of anxiety/panic out of nowhere that started daily
In context ↗ - POTS & dysautonomia
I don’t seem to have POTS anymore
In context ↗ - Heart symptoms & palpitations
I still have the occasional skipped beat (heart PVC)
In context ↗ - Tinnitus
I also have a very faint tinnitus still.
In context ↗ - Vision problems
visual snow/static and other weird vision issues
In context ↗ - Headaches & migraine
weird migraines that has little to no pain but had auras
In context ↗ - Mast cell (MCAS) & allergies
new food sensitivities and intolerances
In context ↗ - Sleep problems
I had horrific insomnia in the beginning
In context ↗ - Neuropathy & tingling
I’ll get numbness in my fingers and toes and even mouth at times
In context ↗ - Temperature regulation
Still can’t tolerate heat or exercise
In context ↗
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