Miruvor
Sign up
Long COVID Outcome unclear

Long COVID with POTS and a standing-only symptom, tried guanfacine and cetirizine

Condition
Long COVID
At worst
Not stated
Ill for
Not stated
Last post
Nov 2025
Read from 4 of their posts and comments; links to the 4 this page draws on

Request to remove this story

Summary

A Reddit user in r/LongCovid who describes the emotional nightmare of chronic illness. Cetirizine with famotidine, PEA, DAO and liposomal vitamin C helped symptoms, while PPIs like lansoprazole and pantoprazole did nothing. Guanfacine really helped, and they mention POTS with a hyperadrenergic picture; a standing-only symptom eased once POTS was better managed. No level of function is described.

Ask Miruvor AI

Asking aboutCrest 50956’s story

What they tried

Their words about each treatment
  • cetirizine · HelpedTaking cetirizine and famotidine together has been helpful. In context ↗
  • PEA · HelpedPEA, DAO and liposomal vitamin C have also been helpful. In context ↗
  • lansoprazole · No changePPIs like lansoprazole and pantoprazole did nothing for me. In context ↗
  • Guanfacine · HelpedGuanfacine really helped me. It turns out it was from having POTS with a hyperadrenergic picture. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—POTS better managed, hot feet when standing easedI used to get something like this a lot before my POTS was better managed. In context ↗
2025-11-12guanfacine helped internal tremors from hyperadrenergic POTSGuanfacine really helped me. It turns out it was from having POTS with a hyperadrenergic picture. In context ↗Guanfacine
2025-11-16living a values-based life made the emotional side manageableIt’s made the emotional nightmare of chronic illness a lot more manageable. In context ↗

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaIt turns out it was from having POTS with a hyperadrenergic picture. In context ↗
  • Neuropathy & tinglingI used to get something like this a lot before my POTS was better managed. In context ↗
  • Anxiety & low moodIt’s made the emotional nightmare of chronic illness a lot more manageable. In context ↗
  • Gut problemsPPIs like lansoprazole and pantoprazole did nothing for me. In context ↗

Ask Miruvor AI

Asking aboutCrest 50956’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime