ME/CFS
Moderate → no benefitIll for 1 year
A year of ME/CFS fatigue, crashes, brain fog and lightheadedness, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 1 year
- Last post
- May 2023
In their words
- Condition: ME/CFS
I'm not asking for a CFS/ME diagnosis, of course
In context ↗ - At worst: Moderate
Sometimes I don't have the energy to leave the house to get groceries for weeks. Sometimes I can't get out of bed for hours to pee
In context ↗ - Now: No benefit
I've been dealing with a specific fatigue issue for a while now, at least ever since I moved out for college at 18.
In context ↗ - Began after: nothing they could name
I've been dealing with a specific fatigue issue for a while now, at least ever since I moved out for college at 18.
In context ↗
Summary
A 19-year-old college student described about a year of fatigue since moving out at 18: sleeping up to 12 hours, crashes after schoolwork or shopping, lightheadedness on standing, brain fog, and post-travel flu-like episodes. Blood tests were normal apart from slightly low vitamin D, which they supplemented. They used melatonin for sleep and a cane to walk; stimulants had caused a mental health crash.
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What they tried
Also tried
Their words about each treatment
- stimulants · Much worse
they make me feel horrible and caused a huge mental health crash in middle school and going on them since has been horrible for my body and my mind
In context ↗ - antidepressants · Helped
I do have clinical depression I take a pretty high dose of antidepressants to manage it a bit
In context ↗ - vitamin D supplements · Not said
besides some slightly low vitamin D that I'm now taking supplements for
In context ↗ - melatonin · Helped
I use melatonin, about 5mg, to get to bed every night otherwise I literally cannot fall asleep
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 18 | fatigue began after moving out for collegeI've been dealing with a specific fatigue issue for a while now, at least ever since I moved out for college at 18.In context ↗ | Moderate |
| 2023-04-08 | still crashing after activity, weeks unable to leave the houseSometimes I don't have the energy to leave the house to get groceries for weeks.In context ↗ | Moderate |
Adverse events
- Stimulants (unspecified)“I would be on stimulants, but they make me feel horrible and caused a huge mental health crash in middle school and going on them since has been horrible for my body and my mind.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migrainePOTS & dysautonomiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
doing school work or socializing or doing something like going out to the grocery store
In context ↗ - Brain fog
My brain gets foggy and I have issues comprehending anything.
In context ↗ - POTS & dysautonomia
I have difficulty standing (and feel strangely lightheaded/tense in my head until I sit down or better yet, lay down).
In context ↗ - Sleep problems
I sleep up to 12 hours a day automatically
In context ↗ - Flu-like symptoms
my throat will begin to hurt, and it'll hurt in the morning
In context ↗ - Temperature regulation
sometimes I get a fever
In context ↗ - Anxiety & low mood
I do have clinical depression
In context ↗