ME/CFS
Severe → no benefit
ME/CFS with severe pain and bad PEM, still in pain after surgery
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
made my M.E. start going crazy
In context ↗ - At worst: Severe
I'm usually moderate to severe depending on the day and stress in my life.
In context ↗ - Now: No benefit
However, I'm still in pain and I'm beyond exhausted and have pretty bad PEM.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS who is usually moderate to severe developed severe pain, went to the emergency room, and had surgery. The pain was about 75% better afterwards, but they were still in pain and had bad PEM; they expected to be unable to leave bed for weeks and were discharged despite wanting to stay for a follow-up. No onset trigger or illness duration was given.
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What they tried
Also tried
Their words about each treatment
- surgery · Not said
I'm in the hospital after having surgery last night. The pain is about 75% better, thankfully.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | Usual ME/CFS baseline, moderate to severe depending on day and stressI'm usually moderate to severe depending on the day and stress in my life.In context ↗ | Severe |
| about 48 hours before 2026-04-16 | Developed severe pain and went to the emergency room; pain and waiting worsened MEAbout 48 hours ago I developed severe pain ... Tremendous amount of pain the entire time which made my M.E. start going crazy.In context ↗ | Severe |
| after surgery last night, 2026-04-16 | Surgery; pain about 75% better but still in pain, exhausted with bad PEM, expects to be bedbound for weeksThe pain is about 75% better, thankfully. However, I'm still in pain and I'm beyond exhausted and have pretty bad PEM.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I'm still in pain
In context ↗ - Post-exertional malaise
I'm beyond exhausted and have pretty bad PEM
In context ↗