Long COVID fatigue and brain fog, somewhat better after medication change and Neuriva
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Jan 2025
In their words
- Condition: Long COVID
They make LC even worse when I get them.
In context ↗ - At worst: Mild
I do on my bad days. ... Headache, blurred and unsteady vision, heaviness in my limbs, and terrible fatigue.
In context ↗ - Now: Somewhat better
I need to find something. I’m better than a year ago but damn this is such a aggravating situation
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
Stream 68299 had been ill for about three years, reporting headaches, itching and rash, blurred vision, heaviness in the limbs, brain fog and terrible fatigue. In September 2024 a new nurse practitioner changed their daily medications and added two new ones, and they began to improve; the supplement Neuriva brought a big difference in brain fog. Bad days grew further apart, but by January 2025 they were still looking for more help.
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What they tried
What they credit
Also tried
Their words about each treatment
- preventative meds · Helped
Luckily, I’m on preventative meds and emergency meds for them so I don’t get them much.
In context ↗ - steroids · Helped
Only thing that has helped that is steroids ... Amazing how much they help
- changes to my daily meds and two new ones · Helped a lot
She made a few changes to my daily meds and gave me two new ones. It’s made so much difference.
In context ↗ - steroid injection into my ears · Helped
A few things have helped me including steroid injection into my ears
In context ↗ - endolymphatic sac decompression surgery · Helped
A few things have helped me including steroid injection into my ears and a endolymphatic sac decompression surgery.
In context ↗ - rest · Not said
On those days, I rest.
In context ↗ - Neuriva · Helped a lot
She suggested I take Neuriva for the brain fog. I’ve been on it about two months and I can feel a big difference.
In context ↗
Approaches: Surgery & structural
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.5 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | Long COVID onset, in third year by October 2024I’m in my third year.In context ↗ | Not stated |
| 2024-09-25 | New nurse practitioner changed daily medications and added two new onesI’m finally improving after seeing a new nurse practitioner.In context ↗ | Not stated |
| 2024-10-07 | Getting a lot better, bad days further apart; Neuriva helped brain fogI seem to be getting a lot better but I still have those days.In context ↗ | Mild |
| 2025-01-28 | Better than a year ago but still looking for something moreI’m better than a year ago but damn this is such a aggravating situationIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I’ve had them for years. They make LC even worse when I get them.
In context ↗ - Vision problems
blurred and unsteady vision
In context ↗ - Muscle weakness
heaviness in my limbs
In context ↗ - Brain fog
She suggested I take Neuriva for the brain fog.
In context ↗
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