ME/CFS
Severe → much betterIll 6 months before improving or writing
Barely able to stand or walk with ME/CFS, now much better and able to work
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 months
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I was recommended this sub
In context ↗ - At worst: Severe
The first two months of the reinfection, I could barely stand or walk
In context ↗ - Now: Much better
but now I able to work and have a functional day
In context ↗ - Began after: glandular fever or EBV
In the summer of 2023, I came down with Mono
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Alder 67903 had EBV mononucleosis in summer 2023 and recovered after 2-3 months. In summer 2024 similar symptoms returned much worse; for the first two months they could barely stand or walk, went to the ER, and felt their body was shutting down. By December 2024 they could work and have a functional day but still had muscle twitching, abdominal discomfort, chest pains, weekly dizziness and health anxiety. They had been given meloxicam for chest pain and Buspar for health anxiety.
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What they tried
Also tried
Their words about each treatment
- meloxicam · Not said
I've only been given meloxicam for chest pain
In context ↗ - Buspar · Not said
Buspar to help with the health anxiety I am developing
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Summer 2024 | Symptoms returned much worse; could barely stand or walkSummer of this year, the similar symptoms came back, but much worse with additional issues. ... The first two months of the reinfection, I could barely stand or walkIn context ↗ | Severe |
| December 2024 | Able to work and have a functional day, with persistent symptomsnow I able to work and have a functional dayIn context ↗ | Mild |
Symptoms mentioned
Anxiety & low moodGut problemsHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaPain & fibromyalgia
Their words about their symptoms
- Heart symptoms & palpitations
It presented as palpitations, chest pain, back pain, fatigue. ... persistent symptoms of muscle twitching, stomach/abdominal discomfort, chest pains
In context ↗ - Gut problems
stomach/abdominal discomfort
In context ↗ - POTS & dysautonomia
once a week dizziness
In context ↗ - Anxiety & low mood
health anxiety I am developing
In context ↗ - Muscle weakness
I could barely stand or walk
In context ↗