ME/CFS fatigue after basic tasks and TMJ ear pain, somewhat better with Nurtec and Botox
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2023
In their words
- Condition: ME/CFS
my old debilitating fatigue
In context ↗ - At worst: Moderate
back to my old debilitating fatigue
In context ↗ - Now: Somewhat better
I feel like my fatigue, is better overall as the pounds come off
In context ↗
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
A Reddit user with CFS described fatigue that lingered after basic tasks and ear pain from TMJ; they found Nurtec, rizatriptan and Botox most effective among treatments they tried. Modafinil gave a night-and-day improvement that faded within a year even at a higher dose; vestibular practices through occupational therapy helped their balance. On Wegovy and Ozempic their fatigue was briefly worse after an injection but better overall as they lost weight.
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What they tried
What they credit
Also tried
Their words about each treatment
- Vestibular ‘practices’ · Helped
It helped my balance a lot.
In context ↗ - Modafanil · Helped a lot
when I stared Modafanil it seemed like a miracle drug. I felt I was somewhat cured ... less than a year later and the drug made zero difference, even at a higher dose.
In context ↗ - heating pad · Helped
A heating pad helps.
In context ↗ - Hylands PM leg cramp pills · Helped
I have used the Hylands PM leg cramp pills for years and I can definitely recommend those.
In context ↗ - Nurtec · Helped
The most effective have been Nurtec, Riztriptain, and Botox injections with my Neurologist.
In context ↗ - Wegovy and Ozempic · Helped
I found the fatigue just a little worse the day or two after the injection. HOWEVER, I feel like my fatigue, is better overall as the pounds come off
In context ↗
Approaches: GLP-1 drugs
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | Ongoing CFS fatigue with basic tasksthe fatigue is still there lurking once you do the most basic tasks.In context ↗ | Mild | |
| — | Started modafinil and felt a night-and-day improvementI felt I was somewhat cured and even cried with joy at the night and day differenceIn context ↗ | Mild | Modafinil / armodafinil |
| 2021-12 | Modafinil stopped working, even at a higher dosesoon there was zero effects at all. My doctor even switched me to a higher dose and I still saw no difference in my fatigue.In context ↗ | Moderate | Modafinil / armodafinil |
| 2023-06-19 | On Wegovy/Ozempic fatigue briefly worse after injections but better overall as weight came offI feel like my fatigue, is better overall as the pounds come offIn context ↗ | Mild | Semaglutide (Ozempic, Wegovy) |
Adverse events
- Semaglutide (Ozempic, Wegovy)“I found the fatigue just a little worse the day or two after the injection.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
The most effective have been Nurtec, Riztriptain, and Botox injections with my Neurologist.
In context ↗ - Pain & fibromyalgia
I get a lot of ear pain because of TMJ.
In context ↗
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