Bedbound with long COVID, now moderate with rest and pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
For me it just happened through resting and pacing but I have the long covid kind of cfs.
In context ↗ - At worst: Severe
I'm moderate rn but I was severe for some time in the very beginning and bed bound.
In context ↗ - Now: Somewhat better
I'm moderate and although not better, I feel I have a decent quality of life.
In context ↗ - Began after: COVID
I have the long covid kind of cfs
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
They got long COVID in their mid-20s and became bed bound after pushing through, then improved to moderate with rest and pacing. Low-dose naltrexone eased the pain of their crashes and made their nights slightly more restorative, but did not raise their energy. They have had depression and anxiety and say therapy helped them cope. They live in the Netherlands on disability checks.
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What they tried
What they credit
Also tried
Their words about each treatment
- LDN · Helped
it does seem to help me sleep at night and have less physiological stress during the night aka I have slightly more restorative nights
In context ↗ - pacing · Helped
For me it just happened through resting and pacing but I have the long covid kind of cfs.
In context ↗ - therapy · Helped
I suffered from both and only after therapy I realized I was terrible at chores because of the way I thought about them
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 24 | got long COVIDI was 24 when I got it and I'll be turning thirty soon.In context ↗ | Not stated | |
| — | became bed bound after pushing throughI became bed bound because I wouldn't slow down.In context ↗ | Severe | |
| 2026-05-15 | reached a moderate level with rest and pacingFor me it just happened through resting and pacing but I have the long covid kind of cfs.In context ↗ | Moderate | Pacing and the energy envelope |
| 2026-08-31 | still moderate, decent quality of lifeI'm moderate and although not better, I feel I have a decent quality of life.In context ↗ | Moderate | Pacing and the energy envelope |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
it has helped me to decrease the pain I feel during a crash
In context ↗ - Pain & fibromyalgia
I see the biggest change in pain during flare ups
In context ↗ - Sleep problems
it does seem to help me sleep at night and have less physiological stress during the night aka I have slightly more restorative nights
In context ↗ - Anxiety & low mood
I say this because I suffered from both and only after therapy I realized I was terrible at chores
In context ↗
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