25 years with ME/CFS, now somewhat better after testosterone replacement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 25 years
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
Have had CFS for 25 years after Eps barr infections in the military
In context ↗ - At worst: Mild
CO in multiple realeestate companys ... 2 long walks a week 3 hours, 3 times with heavy lifting 30 min all body
In context ↗ - Now: Somewhat better
My energy levels are elevated about 50%, but i must be very careful of not going in to a sympatetic state(fight-flight)
In context ↗ - Began after: glandular fever or EBV
after Eps barr infections in the military
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 48-year-old who had had CFS for 25 years, since Epstein-Barr infections during military service, started testosterone replacement (45 mg every other day) about three months before posting. Energy rose about 50% and body composition improved. They still had to avoid tipping into fight-or-flight, which could bring violent crashes, and used breathing exercises during the day to calm; they had long tried meditation, diet, sleep and exercise to compensate.
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What they tried
What they credit
Also tried
Their words about each treatment
- meditation · Not said
Have always tried to compensate with meditation, diet, sleep, exercise.
In context ↗ - Carnivore diet · Not said
was on strict carnivore when started TRT, but had to start with som carbs because of te elevated cortisol, that helped a lot
In context ↗ - 2 long walks a week 3 hours, 3 times with heavy lifting 30 min all body · Not said
excrzize: 2 long walks a week 3 hours, 3 times with heavy lifting 30 min all body
In context ↗ - TRT · Helped
Start TRT for 3 months ago, 45 mg every other day ... My energy levels are elevated about 50%
In context ↗ - Taurine · Not said
supplementing: Taurine, creatine, carnitine, ashwagannda, tonkatAli, magnesium, milktistle, 10 mg cialis 2.3 times a week
In context ↗ - cialis · Not said
10 mg cialis 2.3 times a week
In context ↗ - breathing excercices · Not said
have to do breathing excercices during the day to calm me
In context ↗
Approaches: Sex hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 24.8 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about 25 years before June 2024 (age 23) | CFS began after Epstein-Barr infections during military serviceHave had CFS for 25 years after Eps barr infections in the military, now i am 48In context ↗ | Not stated | |
| about March 2024 | started TRT 45 mg every other day; energy up about 50%decided to Start TRT for 3 months ago, 45 mg every other day ... My energy levels are elevated about 50%In context ↗ | Mild | Testosterone |
| 2024-06-29 | still on TRT; body composition better but must avoid fight-or-flight crashesbodycomp is better , more muscles an less fat, it is possible, but hard work to find the balance.In context ↗ | Mild | Testosterone |
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