Long COVID
RelapsedIll 3 years before improving or writing
Long COVID left him housebound and unable to work; LDN helped brain fog, then he worsened
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I got my long covid diagnosed around 3 years ago after my initial infection in late 2022.
In context ↗ - Now: Relapsed
I had a really good remission last year, and overdid it into a relapse.
In context ↗ - Began after: COVID
after my initial infection in late 2022
Read from 66 of their posts and comments; links to the 25 this page draws on
Summary
A Canadian man in his thirties fell ill with long COVID after an infection in late 2022 and kept working until his condition worsened and he could no longer work. Low-dose naltrexone cleared his brain fog, a beta-blocker helped his POTS, and testosterone from January 2026 improved his energy, muscle and mood but not PEM, likely leaving him infertile. He remained largely housebound or bedridden, and a 2025 trip left him largely bedbound.
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What they tried
What they credit
Also tried
cane· HelpedHypershell X-Ultra exoskeleton· Helped21 mg nicotine patch· HelpedPantoprole· HelpedCBT and DBT therapy· Helpedforearm crutches· Helpedpainkillers· Helpedweed gummies· Helpedweight loss drugs· No change
Their words about each treatment
- cane · Helped
I started to use a cane a year ago, and it helps considerably
In context ↗ - Hypershell X-Ultra exoskeleton · Helped
it did allow me to go from bedridden to walking nearly 1.5 km
In context ↗ - pacing · Helped
nothing works better than straight up just rest and pacing
In context ↗ - 21 mg nicotine patch · Helped
I’ve been trying a 21 mg patch for a week and it’s a massive difference.
In context ↗ - TRT (testosterone gel, later injections) · Helped
After application this morning, I felt a significant rise of energy and my fatigue lifting.
In context ↗ - Pantoprole · Helped
It’s definitely noticeable if I don’t take it lol, I get acid reflux.
In context ↗ - low-dose Naltrexone · Helped
My clinic first identified the brain fog, treated that symptom, and that was among the first things to clear up definitively. That was through low-dose Naltrexone.
In context ↗ - beta-blocker · Helped
they identified that I had POTS, and after a brief period of trying older methods, went with a beta-blocker and that helped significantly
In context ↗ - CBT and DBT therapy · Helped
DBT I can say for myself works ... But for pain? It helps.
In context ↗ - forearm crutches · Helped
These worked REALLY well, and I was excited.
In context ↗ - weight loss drugs · No change
I’m on weight loss drugs, I’m relaxed, I’m calm(so cortisol is low) and I eat one meal a day, a small one. ... And it just won’t go away.
In context ↗ - painkillers · Helped
I find painkillers effective ... pain meds made it bearable
- weed gummies · Helped
1 is to do weed gummies; these are legal where I live, and safe. They don’t make the pain necessarily go away.
In context ↗ - radical rest · Helped
But radical rest is amazing to help this heal.
In context ↗
Approaches: Beta-blockers · Pacing · Radical rest · Sex hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| late 2022 | COVID infection; long COVID began, kept working through itSo I got my long covid diagnosed around 3 years ago after my initial infection in late 2022.In context ↗ | Mild | |
| 2023 | disability claim denied, went back to work, got significantly worse and stopped workingAnd whaddya know, I got significantly worse, and now I can’t work at all.In context ↗ | Moderate | |
| 2025 | remission; able to walk and do outdoor events againI had one last year; I immediately attempted an 8km charity march in full WW1 kit, rifle and pack.In context ↗ | Mild | |
| 2025 | crashed after the march, an 8-hour airsoft event and a flight to his partnerAfter I got back….yeah, I’ve been pretty much on bedrest since.In context ↗ | Severe | |
| October 2025 | crashed after 4,000 steps on a SaturdayI did 4000+ steps on Saturday. I’ve been bedridden since.In context ↗ | Severe | |
| October 2025 | exoskeleton let him walk nearly 1.5 km from bedridden, then hit PEMfor me, it did allow me to go from bedridden to walking nearly 1.5 kmIn context ↗ | Severe | |
| December 2025 | nicotine patch trial gave a massive differenceI’ve been trying a 21 mg patch for a week and it’s a massive difference.In context ↗ | Severe | Nicotine patches |
| January 2026 | hypogonadism diagnosed; testosterone gel started, energy rose the same dayAfter application this morning, I felt a significant rise of energy and my fatigue lifting.In context ↗ | Severe | Testosterone |
| April 2026 | low gel dose shut down his own testosterone and he became more fatigued and in painI feel significantly more pain, my bones hurt, and I’m even more fatigued than when I started.In context ↗ | Severe | |
| June 2026 | on testosterone injections; brain fog gone, muscle and mood better, new daily headachemy muscles are coming in for free(thanks trt) and that’s allowed me the strength to at least get up and move aroundIn context ↗ | Moderate | Testosterone |
| August 2026 | crashed after a walking trip to see his partner; bedbound sinceI got back 2 weeks ago, and been bedbound since.In context ↗ | Severe | |
| October 2026 | mostly bedbound, in pain and getting more bitter by the day, though cognition improvedI spend my entire life in bed, as the news bombards me.In context ↗ | Severe |
Adverse events
- “it did allow me to go from bedridden to walking nearly 1.5 km. However, that still definitely did hit my PEM state; I’m resting today.” In context ↗ Made symptoms worse
- “I overdid it immediately 😂. I like it, it helps significantly, but it can also trap you as it’s easy to push past limits” In context ↗ Made symptoms worse
- “that just me tire faster as I go at that pace. ... I hit that pem wall faster.” In context ↗ Made symptoms worse
- Cane / walking stick“Using a cane puts a lot of stress on the hand on the one side and affects how you walk.” In context ↗ Side effects
- Testosterone“the sheer-nuclear grade pain is making me do unbearably grumpy” In context ↗ Made symptoms worse
- Testosterone“I feel significantly more pain, my bones hurt, and I’m even more fatigued than when I started.” In context ↗ Made symptoms worse
- Testosterone“it shut down my natural production and was too little to help further.” In context ↗ Side effects
- Testosterone“Probably infertile(bad TRT! Go to your room)” In context ↗ Side effects
- Testosterone“All for the cost of a mild/moderate headache.” In context ↗ Side effects
Symptoms mentioned
Brain fogGut problemsHeadaches & migraineMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I did 4000+ steps on Saturday. I’ve been bedridden since.
In context ↗ - Brain fog
LDN cleared up my cognition really well; I suffer a lot less from that now.
In context ↗ - POTS & dysautonomia
I still get dizzy if I bend or stand too much, but my bpm has dropped out of a very dangerous range.
In context ↗ - Sleep problems
I’m up for around 4-6 hours, then sleep, wake up, continue.
In context ↗ - Pain & fibromyalgia
I feel significantly more pain, my bones hurt, and I’m even more fatigued than when I started.
In context ↗ - Muscle weakness
Muscle weakness(fixed by TRT issued)
In context ↗ - Headaches & migraine
New Daily Persistent Headache
In context ↗ - Gut problems
I puke a lot, not by choice.
In context ↗
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