Long COVID with muscle weakness, spasms and severe fatigue, now unable to work and using a walker
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 23 months
- Last post
- Aug 2026
In their words
- Condition: Long COVID
Started three months after second covid infection in June 2024
In context ↗ - At worst: Severe
Not able to work or do much at all.
In context ↗ - Now: No benefit
In November of 2025 all of my previous symptoms returned worse along with new symptoms.
In context ↗ - Began after: COVID
Started three months after second covid infection in June 2024
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Hawk 24710 developed twitching and muscle spasms three months after a second COVID infection in June 2024, then weakness and muscle loss in the left arm and leg. These improved slowly over the next year but did not resolve. After a third infection in July 2025, symptoms returned worse in November 2025 with new severe fatigue and raised heart rate on activity. Now unable to work and walking with a walker, they await a specialist.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 14 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| September 2024 | muscle twitching and spasms began three months after a second COVID infectionStarted three months after second covid infection in June 2024 with generalized fasciculations (muscle twitching)In context ↗ | Not stated |
| 2025 | twitching, spasms and one-sided weakness improved slowly but did not resolveOver the next year these conditions improved slowly but did not resolve.In context ↗ | Not stated |
| November 2025 | after a third COVID infection, all symptoms returned worse with new severe fatigueIn November of 2025 all of my previous symptoms returned worse along with new symptoms.In context ↗ | Severe |
| 2026-08-05 | very weak left arm and leg with muscle loss, unable to work, needs a walkerNot able to work or do much at all.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
my left arm and left leg are very weak with obvious muscle loss
In context ↗ - Pain & fibromyalgia
Then developed a deep sore pain in left quadricep area that eventually lead to weakness.
In context ↗ - Heart symptoms & palpitations
severe fatigue with elevated heart rate with activity
In context ↗