Mostly couchbound with ME/CFS, now nearly back to normal after Curable and JournalSpeak
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 20 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I was mostly couchbound with 11 different symptoms including CFS/ME
In context ↗ - At worst: Severe
I was mostly couchbound with 11 different symptoms
In context ↗ - Now: Near normal
I can walk 5 miles outside up and down lots of hills, be tired for an 1 hour afterward and then feel totally “normal” and good!
In context ↗ - Began after: nothing they could name
My body just kept shutting down more and more each year.
In context ↗
Summary
They were mostly couchbound after 20 years of gradual decline with CFS/ME, brain fog, IBS, insomnia, light and heat sensitivity and MCAS; walking to the end of the driveway left them on the couch for a day. From 2025 they worked through Curable, JournalSpeak and Howard Schubiner's book. By June 2026 they could walk five miles up hills and shop, though they still avoided intense exercise.
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What they tried
What they credit
Their words about each treatment
- Curable · Helped a lot
I've been working on Curable for the past few months, have been doing Journalspeak, woring through Dr. Howard Schubiner's book ... and lately I am doing SO much better!!
In context ↗
Approaches: Brain retraining
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 20 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| ~2005 | gradual decline beganMy body just kept shutting down more and more each year.In context ↗ | Not stated | |
| 2025 | mostly couchbound, 11 symptoms; driveway walk left them on the couch for a dayI was mostly couchbound with 11 different symptomsIn context ↗ | Severe | |
| 2025-08 | doing much better after Curable, JournalSpeak and Schubiner's bookI can clean my house again and do more than one small activity per day.In context ↗ | Moderate | Sarno / TMS / somatic tracking / JournalSpeak |
| 2026-06 | walking five miles up hills and shopping normally, but not doing HIITMy life looks so much bigger and brighter and more active than last year!In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
even trying to walk to the end of my driveway to get my mail and back would leave me immobile on the couch for a day afterwards
In context ↗ - Gut problems
Acid reflux, IBS
In context ↗ - Light & noise sensitivity
Light sensitivity
In context ↗ - Temperature regulation
Heat intolerance
In context ↗
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