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Long COVID Mild → somewhat betterIll 5 years before improving or writingNeeds ongoing treatment

Long COVID with brain fog and balance problems, a bit better after switching to Zyrtec

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
5 years
Last post
Sep 2026
In their words
  • Condition: Long COVIDMy LC is not as bad so I am more fortunate than so many. In context ↗
  • At worst: MildCompared to so many others my symptoms seem mild, I think. In context ↗
  • Now: Somewhat betterI've noticed in the last couple of months my overall LC symptoms improving. In context ↗
  • Began after: COVID10/4 will be my 5y mark of getting covid 5 days after I finished chemo for breast cancer. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

They got COVID-19 in October 2021, five days after finishing chemotherapy for breast cancer, and called their long COVID mild, with brain fog, slight PEM, balance problems and altered taste. They tried nothing for years. About two weeks after switching from Claritin to Zyrtec their balance and brain fog were a bit better and their taste occasionally improved; they kept taking the Zyrtec. Immunotherapy had left them with adrenal insufficiency.

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What they tried

What they credit

Also tried

cancer immunotherapy· Worsechemo· Not saidhydrocortisone· Not saidClaritin· Not said
Their words about each treatment
  • chemo · Not saidI also feel like I may still have aftereffects of all the cancer treatments though I've been cancer free for 5yrs. In context ↗
  • cancer immunotherapy · WorseSecondary Adrenal Insufficiency (SAI) due to cancer immunotherapy treatment. It took out my pituitary gland, so I don't make cortisol anymore. In context ↗
  • hydrocortisone · Not saidI now take hydrocortisone 3x a day to mimic what my pituitary would have done. In context ↗
  • Claritin · Not saidgoing from Claritin to Zyrtec as my allergy med In context ↗
  • Zyrtec · HelpedI noticed about 2wks after changing that my balance and brain fog were a bit better. ... I'll keep taking the Zyrtec. In context ↗

Approaches: H1 antihistamines

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
October 2021Long COVID began five days after finishing chemotherapy for breast cancer10/4 will be my 5y mark of getting covid 5 days after I finished chemo for breast cancer. In context ↗Mild
about 6-9 months before July 2026Slight improvement in taste, balance and brain fog without any treatmentI’m starting to see some slight improvement in taste, balance and brain fog. It started about 6-9mo ago which gives me hope. In context ↗Mild
September 2026Overall LC symptoms improving; balance and brain fog a bit better, taste occasionally betterI noticed about 2wks after changing that my balance and brain fog were a bit better. On occasion my taste seems better. In context ↗Mild

Adverse events

  • “I have Secondary Adrenal Insufficiency (SAI) due to cancer immunotherapy treatment. It took out my pituitary gland, so I don't make cortisol anymore.” In context ↗ Other

Symptoms mentioned

Their words about their symptoms

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