CFS with weeks of sleeping after a day out, much better after an anxiolytic
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 14 years
- Last post
- Mar 2020
In their words
- Condition: ME/CFS
I got CFS when I was 14
In context ↗ - At worst: Moderate
I went from going out one day and sleeping most of the day for weeks after
In context ↗ - Now: Much better
Still not cured, but I have a life again.
In context ↗
Summary
She developed CFS at 14. Before she found an antidepressant that worked, a single day out left her sleeping most of the day for weeks, alongside anxiety, depression and fibro pain. An anxiolytic at 28 improved her CFS greatly, and antidepressants, B12 shots with folate, meditation and supplements helped further. In March 2020 she said she still had CFS but much less, no longer needed daytime naps and had a life again.
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What they tried
What they credit
Also tried
Their words about each treatment
- vitamin B shots and folate · Helped
I had more energy and a much better mood after getting shots plus folate tablets
In context ↗ - anxiolytic drug · Helped a lot
I ended up on an anxiolytic drug that helped improve my CFS greatly
In context ↗ - antidepressants · Helped a lot
I had some awful experiences trying different ones, but when I got one that worked, it made a world of difference
In context ↗ - psychologist · Helped
get the anxiety and depression under control with help from a psychologist
In context ↗ - supplements · Helped
with help from a psychologist, a receptive GP, supplements and daily meditation
In context ↗ - stopping the pill · Helped
stopping the pill really changed my mood for the better
In context ↗
Approaches: CBT & mindset · Benzodiazepines · Mind-body practices · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 14 | developed CFS at 14I got CFS when I was 14In context ↗ | Not stated | |
| — | one day out meant sleeping most of the day for weeks afterI went from going out one day and sleeping most of the day for weeks afterIn context ↗ | Moderate | |
| age 28 | anxiolytic drug greatly improved CFS after a depression and anxiety episodeat age 28 I ended up on an anxiolytic drug that helped improve my CFS greatlyIn context ↗ | Not stated | |
| — | B12 injections and folate gave more energy and better mood; CFS much lessI had more energy and a much better mood after getting shots plus folate tablets. CFS is still around but much less.In context ↗ | Not stated | Folate / folic acid supplements |
| 2020-03-20 | no longer needs a daytime nap; has a life again though not curedStill not cured, but I have a life again.In context ↗ | Mild | Antidepressants (unspecified) |
Adverse events
- Antidepressants (unspecified)“I had some awful experiences trying different ones” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I went from going out one day and sleeping most of the day for weeks after
In context ↗ - Anxiety & low mood
I had terrible anxiety and depression along with CFS
In context ↗ - Pain & fibromyalgia
how much of my fibro pain was from intense muscle tension
In context ↗ - Sleep problems
sleeping most of the day for weeks after
In context ↗
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