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Long COVID Mild → no benefitIll for 2.5 years

Long COVID tiredness for a year, 12 hours' sleep and half-time work, no improvement

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
2.5 years
Last post
Nov 2023
In their words
  • Condition: Long COVIDI was diagnosed with covid long due to the vaccine recently after seeing multiple specialists and having numerous tests. In context ↗
  • At worst: MildI am on half time for work because it was impossible for me to follow a normal rhythm. In context ↗
  • Now: No benefitI am very tired every day, and need a lot of sleep (12 hours and I am still tired). In context ↗
  • Began after: a vaccinationI've been tired for a year after the first injection of the vaccine. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Crest 94544 had been tired for a year since a first vaccine injection and was later diagnosed with long COVID after seeing several specialists. They needed 12 hours of sleep plus 90 minutes in bed each morning, worked half-time, and paid for effort with next-day headaches, fatigue and depression. Physiotherapy rehabilitation made them worse, and NAC and taurine also worsened symptoms.

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What they tried

Their words about each treatment
  • physiotherapist for rehabilitation · WorseI am followed by a physiotherapist for rehabilitation but my condition has worsened with this. In context ↗
  • Vit C · WorseI used to pee a lot when I take Vit C, Magnesium and so on. In context ↗
  • NAC · WorseNAC makes me worse and Taurine also. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2021fatigue began after first vaccine injectionI've been tired for a year after the first injection of the vaccine. In context ↗Not stated
2022-06-10tired every day, 12 hours of sleep, half-time work, two days in bed after effort; rehabilitation physiotherapy made it worseWhen I make an effort, I directly pay the consequences the next day and the day after that In context ↗Mild
2023-11-16still unwell; NAC and taurine make symptoms worse, microbiome test showed sulfur intoleranceNAC makes me worse and Taurine also. In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI am very tired every day, and need a lot of sleep (12 hours and I am still tired). In context ↗
  • Post-exertional malaiseWhen I make an effort, I directly pay the consequences the next day and the day after that (headaches, intense fatigue, depression) In context ↗
  • Headaches & migrainethe consequences the next day and the day after that (headaches, intense fatigue, depression) In context ↗
  • Anxiety & low mood(headaches, intense fatigue, depression) In context ↗
  • Mast cell (MCAS) & allergiesI have also had recent allergies although I was never allergic (allergic rhinitis) In context ↗
  • Brain fogAfter waking up, I have to stay in bed for an hour and a half, otherwise I feel like I'm in another world. In context ↗

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