Bedridden weeks with ME/CFS, somewhat better with cold showers and B vitamins
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2024
In their words
- Condition: ME/CFS
My PCP diagnosed me with CFS/ME last year.
In context ↗ - At worst: Severe
I have experienced debilitating, bedridden weeks.
In context ↗ - Now: Somewhat better
the improvement of those symptoms in turn lessened the fatigue a bit or at least made things more tolerable on my worst days
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
They were diagnosed with CFS/ME in 2023 and have had debilitating, bedridden weeks. Cold showers did not make them worse and helped crashes during PEM; a cold bath once felt resetting. A high-B multivitamin improved cold hands, dizziness and brain fog, and daylight exposure helped tremendously. Vitamin D deficiency treatment was started and Effexor was prescribed, but both were too early to judge. They still reported PEM crashes.
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What they tried
What they credit
Also tried
Their words about each treatment
- several different liquid supplements · Not said
after it seeming to get worse even after taking several different liquid supplements
In context ↗ - nutrition · Not said
focusing hard in nutrition
In context ↗ - not pushing myself · Not said
not pushing myself
In context ↗ - multivitamin with high vitamin Bs · Helped
When I started taking a multivitamin with high vitamin Bs, so many other symptoms I thought were normal (cold hands, dizziness, brain fog, etc.) improved
In context ↗ - cold bath and cold showers · Helped
after getting out I couldn't believe it—I felt completely reset
In context ↗ - vitamin D3 · Not said
I'm taking 50,000 units of D3 once a week for 8 weeks
In context ↗ - light therapy and daylight exposure · Helped a lot
exposing myself to daylight to help with circadian rhythm factors has helped tremendously
In context ↗ - Effexor XL · Not said
I was also prescribed Effexor XL to treat mental health side effects
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 4 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| last year | bedridden weeks with CFS/MEMy PCP diagnosed me with CFS/ME last year. I have experienced debilitating, bedridden weeks.In context ↗ | Severe | |
| 2024-05-06 | couch-bound for two days after a 30-minute walkcouch bound for two days (triggered from taking a 30 minute casual walk)In context ↗ | Severe | |
| 2024-05-06 | felt completely reset after cold bathafter getting out I couldn't believe it—I felt completely reset.In context ↗ | Not stated | Cryotherapy and cold exposure |
| 2024-05-19 | high-B multivitamin improved symptomsWhen I started taking a multivitamin with high vitamin Bs, so many other symptoms I thought were normal (cold hands, dizziness, brain fog, etc.) improvedIn context ↗ | Not stated | |
| 2024-05-26 | cold showers helped PEM crashesIt didn't make me worse and it has definitely helped with crashes during PEM states triggered by emotional or cognitive overload.In context ↗ | Not stated | Cryotherapy and cold exposure |
| 2024-05-26 | daylight exposure helped; still treating low vitamin DI'm still being treated for the D3 and it's too soon to tell there, but exposing myself to daylight to help with circadian rhythm factors has helped tremendously.In context ↗ | Not stated | Vitamin D and sun exposure |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
crashes during PEM states triggered by emotional or cognitive overload.
In context ↗ - Brain fog
brain fog, etc.) improved
In context ↗
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