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Long COVID Somewhat betterIll 18 months before improving or writing

Long COVID: extreme fatigue, breathlessness, somewhat better after low-dose naltrexone

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
18 months
Last post
May 2024
In their words
  • Condition: Long COVIDI have had LC for 18 months. In context ↗
  • Now: Somewhat betterI am sure it has reduced breathlessness & fatigue. Not a miracle cure but has defintely been a positive impact. In context ↗
  • Began after: COVIDI have had LC for 18 months. In context ↗
Read from 3 of their posts and comments; links to the one this page draws on

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Summary

Summit 79696 had long COVID for 18 months, with extreme fatigue and breathlessness as the main symptoms and severity varying greatly day to day. A GP prescribed low-dose naltrexone four months before the post; they started at 0.5 mg and titrated up to 4.5 mg. They said it was the first medication to have any impact, reducing breathlessness and fatigue, a positive but modest effect. The compounded liquid cost $65 for 30 mL.

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What they tried

What they credit

Their words about each treatment
  • LDN · HelpedI started on LDN 4 months ago. Started on 0.5mg and titrated up to 4.5mg. I believe this is the first medication that has made any impact. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
~18 months before May 2024developed long COVIDI have had LC for 18 months. Extreme fatigue & breathlessness my main symptoms. In context ↗
about 4 months before May 2024started low-dose naltrexone and titrated upI started on LDN 4 months ago. Started on 0.5mg and titrated up to 4.5mg. In context ↗Low-dose naltrexone
2024-05-07reduced breathlessness and fatigue on LDN, still limitedNot a miracle cure but has defintely been a positive impact. In context ↗Low-dose naltrexone

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessExtreme fatigue & breathlessness my main symptoms. In context ↗

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