Long COVID fatigue and neuropathy, somewhat better on gluten-free diet
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 9 months
- Last post
- Apr 2021
In their words
- Condition: Long COVID
as of 6 months into long COVID
In context ↗ - Now: Somewhat better
An autoimmune diet alone has also improved my symptoms about 25-30%, which I'm really thankful for.
In context ↗ - Began after: COVID
I got ill in March 2020 ... 6 months into long COVID
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Plover 67122 fell ill with COVID-19 in March 2020 and for months had fatigue, autonomic hyperactivity, a low heart rate, heart and lung inflammation and peripheral neuropathy. A gluten- and dairy-free autoimmune diet improved symptoms by 25-30%, cutting gluten cleared 95% of the neuropathy within days, and sweet wormwood helped further. A brief keto trial was dropped over side effects.
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What they tried
What they credit
Also tried
Their words about each treatment
- alcohol (two beers) · Helped
During drinking and the day afterwards I have found myself with more energy than at any point previously.
In context ↗ - counselling · Not said
I have been having some counselling as part of my recovery
In context ↗ - sweet wormwood (artemisia annua) · Helped a lot
I have found sweet wormwood (artemisia annua) has done wonders for me which is a traditional herb used in Chinese medicine.
In context ↗ - autoimmune (AIP) diet · Helped
An autoimmune diet alone has also improved my symptoms about 25-30%, which I'm really thankful for.
In context ↗ - gluten-free diet · Helped
I decided to cut it out for an experiment, which I was amazed to see got rid of 95% of my neuropathy within a few days.
In context ↗ - ketogenic diet · Worse
I briefly went into ketosis last November, but ended up giving up early due to the side effects.
In context ↗
Approaches: Diet · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19 illness; long COVID beganI got ill in March 2020In context ↗ | Not stated | |
| before November 2020 | relapse (trigger not stated)since before my most recent relapseIn context ↗ | Not stated | |
| 2020-11-18 | more energy than at any point previously after two beersDuring drinking and the day afterwards I have found myself with more energy than at any point previously.In context ↗ | Not stated | |
| 2020-12-25 | recovering, having counselling and a changed outlook; planning a move out of LondonI have been having some counselling as part of my recoveryIn context ↗ | Not stated | CBT and psychotherapy |
| 2021-01-03 | sweet wormwood helped and an autoimmune diet improved symptoms 25-30%I have found sweet wormwood (artemisia annua) has done wonders for meIn context ↗ | Not stated | |
| 2021-03-01 | peripheral neuropathy mostly resolved after cutting glutenI have had some peripheral neuropathy too which has mostly resolved since I cut gluten out of my dietIn context ↗ | Not stated | |
| 2021-04-10 | autoimmune protocol diet made a great difference; cow dairy given up, some foods reintroducedgoing on an autoimmune protocol diet made a great difference to me previouslyIn context ↗ | Mild |
Adverse events
- Keto and low-carb diets“I briefly went into ketosis last November, but ended up giving up early due to the side effects.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I have had some peripheral neuropathy too which has mostly resolved since I cut gluten out of my diet
In context ↗ - POTS & dysautonomia
my main ones so far have been fatigue, ANS hyperactivity and low heart rate
In context ↗ - Heart symptoms & palpitations
I have 2 of the "classic" lupus symptoms (nerve problems and inflammation of the heart/lungs)
In context ↗
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