ME/CFS for six years, pretty severe and hard to stand, now much better and working
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 years
- Last post
- May 2023
In their words
- Condition: ME/CFS
after 6 years of pretty severe CFS im finally extremely mild
In context ↗ - At worst: Severe
after 6 years of pretty severe CFS
In context ↗ - Now: Much better
im finally extremely mild and sometimes i want to cry of happiness knowing that i finally have a job and that i can finally GO OUTSIDE and can stand up without being in severe pain now
In context ↗
Summary
Dew 49567 had CFS for six years, describing it as 'pretty severe' and painful enough that standing up was hard; at some point they decided amazing grades weren't worth the crash at the end of each trimester. By May 2023 they said they were 'extremely mild', had a job, could go outside and could stand without severe pain.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- sacrificing grades for health · Helped
amazing grades were not worth the giant crash I’d get at the end of the trimester, it’s actually made jt so much easier to get through
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2017 | onset of CFS, then six years of severe illnessafter 6 years of pretty severe CFSIn context ↗ | Severe |
| 2023-05-04 | improved to 'extremely mild'; able to work and go outside without severe painim finally extremely mild and sometimes i want to cry of happiness knowing that i finally have a job and that i can finally GO OUTSIDEIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the giant crash I’d get at the end of the trimester
In context ↗ - Pain & fibromyalgia
can stand up without being in severe pain now
In context ↗
Ask Miruvor AI
Similar stories
-
Unable to walk around house with long COVID, much better after pacing and antihistamines
A Canadian man with long COVID for about three years was unable to walk around the house for the first two years, with constant migraines, brain fog and PEM. From year three, pacing, rest, stress reduction, H1/H2 antihistamines, hydroxyzine for sleep,…
-
Mostly bedbound and housebound with ME/CFS, pacing and rest helped before a relapse
Valley 16092 has had ME/CFS and fibromyalgia for about 25 years; stress and lifelong health problems led to a crash from 60-hour workweeks. They never became severe but have been mostly bedbound and housebound, and pacing, rest and comorbidity medication…
-
Mostly housebound with ME/CFS, now a little better on Klonopin and low-dose naltrexone
Joseph, 47, in Los Angeles, developed ME/CFS in January 2024, about 18 days after a second COVID infection. He declined from mild to the bad end of moderate over six months, becoming mostly housebound. Klonopin, low-dose naltrexone, midodrine and propranolol…
-
Long COVID brain fog, somewhat better with nicotine patch and naltrexone
Pebble 25278 developed long COVID with brain fog, distorted smell, headaches, nerve pain and trouble sleeping. A quarter of a 10 mg nicotine patch restored much of their speech and thinking, and low-dose naltrexone further raised their cognitive and physical…