Long COVID, bedridden after a workout; pacing and supplements brought no improvement
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 3 years
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I believe covid reactivated CFS/ME that was in remission for 8 years ... My flavor is CFS and intermittent anosmia.
In context ↗ - At worst: Moderate
He is my caretaker since I can’t work. Cleaning the house (to varying degrees) and grocery shopping are all I can do most days.
In context ↗ - Now: No benefit
Reinfection set me back to nearly square one.
In context ↗ - Began after: COVID
I believe covid reactivated CFS/ME that was in remission for 8 years
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Kestrel 69937 had long COVID for about three years, which they believe reactivated CFS/ME that had been in remission for eight years. A reinfection set them back nearly to square one, and a 30-minute elliptical workout left them bedridden for days. They cannot work; cleaning and grocery shopping are most of what they manage, with excruciating muscle pain and intermittent anosmia. They paced, took supplements and meditated, and planned to try nicotine patches.
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What they tried
Also tried
Their words about each treatment
- 30 min elliptical machine workout · Worse
It’s day 5 of being bedridden following a mere 30 min elliptical machine workout.
In context ↗ - pacing · Not said
Back to pacing, supplement stacks (as much as I can afford), meditation.
In context ↗ - Lift with Cee workout videos · Not said
Right now Lift with Cee on youtube is amazing. I can only do the first video in her series for newbies (and I modify to avoid the romanian deadlifts and deep squats).
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | COVID reactivated CFS/ME that had been in remission for eight yearsI believe covid reactivated CFS/ME that was in remission for 8 yearsIn context ↗ | Not stated |
| 2025 | reinfection set them back to nearly square oneReinfection set me back to nearly square one.In context ↗ | Not stated |
| 2025-05-30 | bedridden for days after a 30-minute elliptical workoutIt’s day 5 of being bedridden following a mere 30 min elliptical machine workout.In context ↗ | Severe |
| 2025-06-02 | three years in, housebound and unable to workCleaning the house (to varying degrees) and grocery shopping are all I can do most days.In context ↗ | Moderate |
| 2025-07-22 | doing the first beginner workout video, modifiedI can only do the first video in her series for newbies (and I modify to avoid the romanian deadlifts and deep squats).In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
It’s day 5 of being bedridden following a mere 30 min elliptical machine workout.
In context ↗ - Pain & fibromyalgia
The muscle pain is excruciating but sometimes it lessons.
In context ↗ - Headaches & migraine
Last month I had a really bad headache for two weeks straight
In context ↗ - Loss of smell or taste
My flavor is CFS and intermittent anosmia.
In context ↗