Long COVID flares every eight weeks for 18 months, now much better on H1 and H2 blockers
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 18 months
- Last post
- Sep 2023
In their words
- Condition: Long COVID
After 18mths of long covid and flares every 8weeks
In context ↗ - Now: Much better
It has made a HUGE difference in how I feel. ... Once I started those medications (2-3 allegra a day, 40mg of pepcid 2x daily) it made a huge difference.
- Began after: COVID
After 18mths of long covid and flares every 8weeks
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
After 18 months of long COVID with flares every eight weeks, she began treating herself for mast cell dysregulation and histamine intolerance with high-dose H1 and H2 blockers, which she says made a huge difference and largely ended her temperature intolerance. A doctor-prescribed medication at 1000 mg twice daily, for its anti-inflammatory effect, also helped a lot; she was also put on spironolactone. By her latest post a full breath was still painful, eased by Celebrex.
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What they tried
What they credit
Also tried
Their words about each treatment
- Metformin · Helped a lot
My doctor prescribed me 1000mg 2x a day because one of the side effects is reducing inflammation. It has made a HUGE difference in how I feel.
In context ↗ - spironolactone · Not said
as a female they put me on spironolactone because it makes estrogen work better in your body which also reduces inflammation
In context ↗ - allegra · Helped a lot
Once I started those medications (2-3 allegra a day, 40mg of pepcid 2x daily) it made a huge difference
In context ↗ - celebrex · Helped
My allergist actually prescribed me celebrex and that has helped ease it a lot.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Other drugs and medicines
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| March 2022 | long COVID with flares every eight weeksAfter 18mths of long covid and flares every 8weeksIn context ↗ | |
| 2023-09-11 | metformin and spironolactone gave a huge difference in how they feelMy doctor prescribed me 1000mg 2x a day ... It has made a HUGE difference in how I feel.In context ↗ | Metformin |
| 2023-09-12 | treating as mast cell dysregulation and histamine intolerance with H1 and H2 blockers made a huge differenceOnce I started those medications (2-3 allegra a day, 40mg of pepcid 2x daily) it made a huge difference.In context ↗ | Fexofenadine (Allegra) |
| 2023-09-13 | higher doses of H1 and H2 blockers left them rarely having temperature problemsI now take double or triple the amount of H1 and H2 blockers and rarely have an issue with temperature.In context ↗ | Famotidine (Pepcid) |
| 2023-09-26 | still painful to take a full breath; celecoxib eased ittaking a full breath is painful. My allergist actually prescribed me celebrex and that has helped ease it a lot.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I was actually histamine intolerant and my mast cells were dysregulated
In context ↗ - Temperature regulation
I now take double or triple the amount of H1 and H2 blockers and rarely have an issue with temperature.
In context ↗ - Pain & fibromyalgia
OMG yes!! Like i've been beaten!
In context ↗
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