Burning and food reactions in ME/CFS, remission on monolaurin then relapse after vaccine
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
Worked wonders for me until immunological shot happened.
In context ↗ - Now: Relapsed
I got into a pretty good remission with it from a chronic infection but it took years ... I had a love affair with that supplement until I took the vaccine.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Glade 97615 described a chronic infection behind their mast cell activation, with burning sensations all over, food reactions and an ulcer. Lauricidin (monolaurin), increased a quarter pellet at a time over years, brought a good remission but lit up one symptom after another, and the benefit ended after a vaccination. They also took vitamin C, a gut powder and vitamin D.
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What they tried
What they credit
Also tried
Their words about each treatment
- vit D · Not said
Also vit D is great for mast cells ... but I just take it
In context ↗ - vit C · Helped
when I was able to introduce a gut powder (seeking health) and a bit of vit C that helped a lot
In context ↗ - vit B · Worse
A friend of mine had good results with long COVID with vit B (I can not tolerate).
In context ↗ - anti-inflammatory diet · Not said
I haven't drank or ate sugar in years but I was able to reintroduce butter and lactose free yogurt and green tea and tahini after a while.
In context ↗ - Zinc carnosine · Helped
Zinc carnosine for my ulcer and plenty of gut powder
In context ↗ - LAURICIDIN (monolaurin) · Helped a lot
I got into a pretty good remission with it from a chronic infection but it took years
In context ↗ - DNRS · No change
Doesn’t work for me? How did you do it?
In context ↗ - mast cells stabilizers · Worse
I don’t do great with mast cells stabilizers natural or otherwise
In context ↗
Approaches: Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | onset of illness, later traced to a chronic infectionI got into a pretty good remission with it from a chronic infectionIn context ↗ |
| before October 2023 | good remission built up slowly with LauricidinWorked wonders for me until immunological shot happened.In context ↗ |
| before October 2023 | fell off a cliff again after reintroducing foodsThen I fell off a cliff again.In context ↗ |
| before October 2023 | vaccine problems; benefit of monolaurin losthad problems with the vaccineIn context ↗ |
| 2024-08-23 | latest post: supplement stopped agreeing after the vaccineI had a love affair with that supplement until I took the vaccine.In context ↗ |
Adverse events
- Vitamin B complex“vit B (I can not tolerate)” In context ↗ Side effects
- “(I used seeking health but can not tolerate it anymore)” In context ↗ Side effects
- “had problems with the vaccine” In context ↗ Other
- Mast cell stabilizers (unspecified)“I don’t do great with mast cells stabilizers natural or otherwise” In context ↗ Side effects
- Monolaurin (Lauricidin)“It lit me up like a Christmas tree one symptom after the other.” In context ↗ Herx / die-off reaction
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
My mast cells are pathogens geared
In context ↗ - Neuropathy & tingling
the burning feeling everywhere was greatly reduced when I strengthened my GIT
In context ↗ - Gut problems
Zinc carnosine for my ulcer
In context ↗
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