ME/CFS
Severe → somewhat betterIll 11 years before improving or writing
Hardly able to walk some days with ME/CFS, bedbound after Moderna, now somewhat better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 11 years
- Last post
- Jan 2022
In their words
- Condition: ME/CFS
I have got mono on year 2011 ... mostly i recovered and last 4 years struggling again but this time it doesnt stop
In context ↗ - At worst: Severe
I'm bed bound 3/4 of day after 2nd dose of moderna after 2.5 weeks
In context ↗ - Now: Somewhat better
second dose of moderna made me feel more tired for 3-4 months and then i started to get better
In context ↗ - Began after: glandular fever or EBV
I have got mono on year 2011, dropped out college that year
In context ↗
Read from 18 of their posts and comments; links to the 15 this page draws on
Summary
They date their illness to glandular fever (mono) in 2011, when they dropped out of college, recovered greatly, then relapsed around 2016-2018 after pneumonia, flu and mental health problems. By early 2021 they could hardly walk some days and worked only four hours. A second Moderna dose left them bedbound three-quarters of the day, with extra fatigue for three to four months before they began to get better, and they declined a booster.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- weed · Helped
When I had a bit experiment with weed and effects wore off I suffered intense fatigue and dp which get lifted if I take puff
In context ↗ - benzos / xanax · Worse
Eversince ive tried benzos and gotten off them its worse, please be carefull with these devil drugs
In context ↗ - chiropractor · Helped
got good results with chiropractor and PT arm...no constant spasms anymore
In context ↗ - abilify · Worse
Wow I tried 2.5 mg it was stimulating then 5 mg ... I had bad case of anxiety and it got worse by restlessness from abilify
In context ↗ - dexamethasone · Much worse
last time ive got dexamethasone injected into my ass (systemic absorbtion) ... i felt like i died
In context ↗ - antidepressant · Worse
I was medicated with antidepressant and antipsychotic and it made me so zombie to the point of not wanting to do anything or live
In context ↗ - antipsychotic · Worse
I was medicated with antidepressant and antipsychotic and it made me so zombie
In context ↗ - vitamin D · Worse
Please be careful with vitamin D for long time since I got hypercalcaemia
In context ↗ - COVID vaccination as treatment · Worse
I'm bed bound 3/4 of day after 2nd dose of moderna after 2.5 weeks
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2011 | glandular fever (mono); dropped out of collegeI have got mono on year 2011, dropped out college that yearIn context ↗ | Mild |
| 2011, two months after mono | collapsed after trying exercise at the gymi remember when i went to try excercise in the gym, 2 months after i coudnt do shit so i left gym and gone home.In context ↗ | Moderate |
| — | mostly recovered after the EBV illnesslets say i recovered greatly after itIn context ↗ | Near normal |
| 2017 | relapse that did not stop, after pneumonia, flu and mental health problemsmostly i recovered and last 4 years struggling again but this time it doesnt stopIn context ↗ | Moderate |
| 2021-02 | got worse pushing through night shifts; spine trouble, could hardly walk some daysi got worse, fucked my spine, hardly walk some days, now i work only 4 hrsIn context ↗ | Moderate |
| 2021-06 | bedbound three-quarters of the day after second Moderna doseI'm bed bound 3/4 of day after 2nd dose of moderna after 2.5 weeksIn context ↗ | Severe |
| late 2021 | began to get better once the vaccine-related fatigue easedmade me feel more tired for 3-4 months and then i started to get betterIn context ↗ | Moderate |
| 2022-01-12 | declined a booster after the second dose reactionNot going for booster..was destroyed by 2nd dose with additional fatigue for monthsIn context ↗ | Moderate |
Adverse events
- Alprazolam (Xanax)“Eversince ive tried benzos and gotten off them its worse, please be carefull with these devil drugs” In context ↗ Withdrawal problems
- Low-dose Abilify / aripiprazole“i had so bad akathesia/restlessness, wired and tired feeling on it and i crashed like fuck” In context ↗ Side effects
- Low-dose Abilify / aripiprazole“I tried 2.5 mg it was stimulating then 5 mg And discontinued.. I had bad case of anxiety and it got worse by restlessness from abilify” In context ↗ Mood or psychiatric effects
- Corticosteroid pulses“last time ive got dexamethasone injected into my ass (systemic absorbtion), after 3 days ... i felt like i died” In context ↗ Made symptoms worse
- Corticosteroid pulses“Once I had been administered 8mg od dexa, after 4 days I was drained af.literally dead” In context ↗ Made symptoms worse
- Antidepressants (unspecified)“I was medicated with antidepressant and antipsychotic and it made me so zombie to the point of not wanting to do anything or live” In context ↗ Mood or psychiatric effects
- Antidepressants (unspecified), Antipsychotics (unspecified)“I was medicated with antidepressant and antipsychotic and it made me so zombie to the point of not wanting to do anything or live” In context ↗ Mood or psychiatric effects
- COVID vaccination as treatment“I'm bed bound 3/4 of day after 2nd dose of moderna after 2.5 weeks” In context ↗ Made symptoms worse
- Vitamin D and sun exposure“Please be careful with vitamin D for long time since I got hypercalcaemia” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
i went to try excercise in the gym, 2 months after i coudnt do shit
In context ↗ - Pain & fibromyalgia
got good results with chiropractor and PT arm...no constant spasms anymore
In context ↗ - Muscle weakness
fucked my spine, hardly walk some days
In context ↗ - Anxiety & low mood
i think combination of pneumonia at 2016, flu 2018 and mental health issues finished me up
In context ↗ - Tinnitus
ignored tinnitus along I just accepted it
In context ↗