Constant flu-like ME/CFS baseline, now somewhat better with monolaurin and L-lysine
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
I stopped focusing so much on avoiding PEM (though I still pace)
In context ↗ - At worst: Severe
that 24/7 feeling of having the flu, the sore glands, the brain fog, and just feeling poisoned even when I hadn't moved from bed
In context ↗ - Now: Somewhat better
It didn't cure the energy envelope issue (I still have to be careful) but it got rid of the constant sore throat and that "infected" feeling.
In context ↗
Read from 21 of their posts and comments; links to the 10 this page draws on
Summary
Posting on r/cfs, they described a constant flu-like baseline with sore throat, brain fog, tinnitus and a reactive gut, and crashes in bed feeling poisoned. They credited monolaurin, later stacked with biofilm enzymes, with easing the viral and gut load and raising their baseline so crashes were less deep, and L-lysine with lowering anxiety and stress. They still had to pace, and the biofilm enzymes caused a die-off that made them worse first.
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What they tried
What they credit
Also tried
Their words about each treatment
- Monolaurin · Helped
I eventually found Monolaurin to be helpful because it offered gentle immune and gut support
In context ↗ - L-Lysine · Helped
I found it actually made a huge difference in lowering my background anxiety and stress levels too
In context ↗ - mulberry leaf with loquat extract · Helped
I started using a mulberry leaf with loquat extract to help buffer that glucose response
In context ↗ - stronger antivirals · Worse
without the harsh crash I got from stronger antivirals
In context ↗ - biofilm defense (Serrapeptase and Nattokinase) · Helped
I ended up using the biofilm defense from natural cure labs for the enzyme part
In context ↗ - pacing / managing my energy envelope · Not said
though I still pace
In context ↗ - aggressive rest · Helped
aggressive rest was the only thing that got me through the immediate collapse
In context ↗
Approaches: Amino acids and carnitine · Anticoagulants · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | worst crashes with a reactive gut and a constant poisoned, flu-like baseline, in bedjust feeling poisoned even when I hadn't moved from bedIn context ↗ | Severe |
| — | monolaurin eased the viral and gut load and stopped the slidecalming that internal inflammatory noise helped me stop the slide and eventually find a bit of stabilityIn context ↗ | Moderate |
| 2026-03-04 | baseline raised, crashes shallower, back to standard doses but still pacingI'm back to handling standard doses nowIn context ↗ | Mild |
Adverse events
- Monolaurin (Lauricidin), Serrapeptase, Nattokinase“I got a "die-off" reaction (Herxheimer) that made me feel worse before I felt better” In context ↗ Herx / die-off reaction
- “I was often reacting to the binders and fillers in the pills (like magnesium stearate or silicon dioxide) rather than the supplement itself.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I stopped focusing so much on avoiding PEM (though I still pace)
In context ↗ - Flu-like symptoms
that 24/7 feeling of having the flu, the sore glands
In context ↗ - Brain fog
I could hold a thought again without that physical backlash
In context ↗ - Tinnitus
I relate heavily to the tinnitus when trying to focus
In context ↗ - Gut problems
When my gut was that reactive, it felt like my immune system was fighting a constant war on the inside
In context ↗ - Mast cell (MCAS) & allergies
I had to be extremely careful with what I took because everything seemed to trigger a reaction
In context ↗ - Anxiety & low mood
it actually made a huge difference in lowering my background anxiety and stress levels too
In context ↗
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