ME/CFS
Severe → somewhat better
Needed a powered wheelchair with ME/CFS, somewhat better after coming off amitriptyline
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I tried out self propelled and its far too much exertion for me even for a couple minutes indoors.
In context ↗ - At worst: Severe
I use a folding powered chair. I tried out self propelled and its far too much exertion for me even for a couple minutes indoors.
In context ↗ - Now: Somewhat better
I got a bit more "back to normal" after getting off of it. But never went back to my previous energy levels.
In context ↗
Summary
Petrel 76805 was ill enough to need a folding powered wheelchair and found self-propelling one too much exertion even for a couple of minutes indoors. Amitriptyline left them a zombie, completely bed bound and worse than their normal until they stopped it. Coming off it brought them a bit more back to normal, but they never regained their previous energy levels.
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What they tried
Also tried
Their words about each treatment
- Amitriptyline · Much worse
Amitriptyline actually ruined my life until I got off it ... completely bed bound (worse than my normal) and no will or desire to do anything
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | completely bed bound while taking amitriptyline, worse than their normalI was basically a zombie-- completely bed bound (worse than my normal) and no will or desire to do anything.In context ↗ | Severe |
| April to September 2026 | a bit more back to normal after stopping amitriptyline, but never back to previous energy levels; uses a powered wheelchairI got a bit more "back to normal" after getting off of it. But never went back to my previous energy levels.In context ↗ | Moderate |
Adverse events
- Amitriptyline (Elavil)“I was basically a zombie-- completely bed bound (worse than my normal)” In context ↗ Made symptoms worse
- Amitriptyline (Elavil)“no will or desire to do anything” In context ↗ Mood or psychiatric effects
- Amitriptyline (Elavil)“Amitriptyline actually ruined my life until I got off it.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
its far too much exertion for me even for a couple minutes indoors
In context ↗ - Brain fog
But I cant remember what dosage I was on.
In context ↗ - Anxiety & low mood
no will or desire to do anything
In context ↗