Long COVID fatigue and POTS, POTS improving but daily migraines and brain fog remain
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 15 months
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I'm 15 months into long covid.
In context ↗ - At worst: Moderate
Have been holed up at my parent's house since Christmas.
In context ↗ - Now: Somewhat better
The POTS started getting better over the summer.
In context ↗ - Began after: COVID
I'm 15 months into long covid.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Birch 55283 has had long COVID for about 15 months, with fatigue and POTS as the main symptoms; the POTS began improving over the summer of 2024. In early August 2024 daily migraines with light sensitivity started, along with brain fog and being overwhelmed by stimulation, and they have stayed in the dark with an eye mask since. A preventive migraine medication was just started and had not helped yet when they posted.
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What they tried
Also tried
Their words about each treatment
- preventing migraine medication · Not said
Just started taking a preventing migraine medication, since I seem to get them everyday. It's not working yet.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2023 | long COVID beganI'm 15 months into long covid.In context ↗ | Not stated |
| Christmas 2023 | holed up at parent's houseHave been holed up at my parent's house since Christmas.In context ↗ | Moderate |
| summer 2024 | POTS began to improveThe POTS started getting better over the summer.In context ↗ | Moderate |
| early August 2024 | daily migraines with light sensitivity beganIn early August I started getting migraines as a result of light sensitivity.In context ↗ | Moderate |
| September 2024 | staying in the dark; migraine preventive not working yetFor the last two months I've stayed in the dark - wearing an eye mask and blocking all outside light.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
My main symptoms were fatigue and POTS.
In context ↗ - Brain fog
I also have brain fog and get overwhelmed with too much stimulation.
In context ↗ - Headaches & migraine
In early August I started getting migraines as a result of light sensitivity.
In context ↗