Miruvor
Sign up
ME/CFS Moderate → much better

Barely sleeping at night with ME/CFS, now much better after iron infusions and CPAP

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
Sep 2026
In their words
  • Condition: ME/CFSAn iron infusion helped my chronic fatigue a ton, as did CPAP. In context ↗
  • At worst: ModerateI was miserable and napping at 10, and 2, and 6. In context ↗
  • Now: Much betterI’m still tired during the day, mind. But after starting CPAP (bilevel) I DO sleep through the night and I don’t need naps. In context ↗
  • Began after: nothing they could nameBad sleep was just normal to me.
Read from 9 of their posts and comments; links to the 6 this page draws on

Request to remove this story

Summary

A woman who had slept badly for years, waking to urinate and needing bed straight after work, reached a point where she was barely sleeping at night and napping at 10am, 2pm and 6pm. Iron infusions helped her fatigue, and after a mild sleep apnoea diagnosis she started bilevel CPAP, which took about nine months to help; she now sleeps through the night and no longer naps. She was still tired and was pursuing skeletal expansion.

Ask Miruvor AI

Asking aboutPebble 54648’s story

What they tried

Their words about each treatment
  • iron infusion · HelpedAn iron infusion helped my chronic fatigue a ton, as did CPAP. In context ↗
  • CPAP (bilevel) · Helpedafter starting CPAP (bilevel) I DO sleep through the night and I don’t need naps In context ↗
  • caffeine · No changewent off caffeine recently. I’m still tired, but runs out caffeine wasn’t really helping either In context ↗
  • skeletal expansion · Not saidI need skeletal expansion and am going through that process right now. In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—years of poor sleep, bed straight after workyears previously I’d get home and need to go straight to bed. I never slept well. In context ↗Mild
—barely sleeping at night, napping three times a dayby before I got diagnosed I basically wasn’t sleeping at all. I was miserable and napping at 10, and 2, and 6. In context ↗Moderate
2025-04-24iron infusion helped her fatigueI just got infusions for it and it helped quite a bit. In context ↗Not statedIron infusion / ferritin repletion
2026-01-14mild sleep apnoea treatedI had mild sleep apnea and it was fucking up my whole entire life. Treated, I am doing better. In context ↗MildCPAP and sleep apnoea treatment
2026-06-26started bilevel CPAP, sleeps through night, no napsafter starting CPAP (bilevel) I DO sleep through the night and I don’t need naps. In context ↗MildCPAP and sleep apnoea treatment
2026-09-11about nine months to improvement, now pursuing skeletal expansionIt took me about 9 months to feel improvement. In the end, though, I need skeletal expansion and am going through that process right now. In context ↗MildCPAP and sleep apnoea treatment

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI never slept well. I had to get up to pee several times during the night. Bad sleep was just normal to me. In context ↗
  • Anxiety & low moodI was miserable and napping at 10, and 2, and 6. In context ↗

Ask Miruvor AI

Asking aboutPebble 54648’s story

Similar stories

  • Not enough detail to draw a path

    Daily nerve pain and brain fog with long COVID, much better after deficiencies corrected

    Much better Alpine 75964 Long COVID Moderate at worstIll 2 years before improving or writing reddit.com Oct 2026

    Alpine 75964, a 25-year-old woman, fell ill with COVID in July 2024 and was in pain daily, with nerve pain, brain fog, anxiety and intrusive thoughts. Correcting deficiencies, antihistamines, aspirin, probiotics and other supplements improved her step by…

  • Mild ME/CFS with weeks-long crashes, now somewhat better after CPAP and light management

    Somewhat better Crest 34637 ME/CFS Mild at worstIll 5.5 years before improving or writing reddit.com Oct 2026

    Crest 34637 had mild ME/CFS, at about 70-80% of normal, for about five to six years before being diagnosed, working eight-hour shifts and crashing for weeks after overexertion. CPAP for moderate sleep apnoea was the first thing that helped, and vitamin D,…

  • Moderate-to-severe ME with long COVID, somewhat better after iron infusions and daily B12

    Somewhat better Nightjar 99108 Long COVID Moderate at worstIll 2 years before improving or writing reddit.com Sep 2026

    An American long COVID patient with ME, MCAS, hyperadrenergic POTS, hEDS, CCI and SIBO called their ME moderate-to-severe. Three iron infusions for low ferritin lifted them from mod-severe to moderate ME, and they now inject B12 daily. Maraviroc with a…

  • Not enough detail to draw a path

    Long COVID for three years with panic attacks, now near normal after time and CPAP

    Near normal Bluebell 26007 Long COVID Mild at worstIll 3 years before improving or writing reddit.com Jul 2026

    Got COVID in June 2020 while working in a restaurant and was ill with long COVID for about three years, with panic attacks, palpitations, chest pain, gut problems, heat intolerance and anxiety. They credit time, plus CPAP for sleep apnoea, iron for anaemia,…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime