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Long COVID Moderate → much betterIll 2 years before improving or writing

Extremely sick with long COVID and POTS-like symptoms, much better on a whole-foods diet

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
Aug 2024
In their words
  • Condition: Long COVIDI also just had covid a few weeks ago so I’m really hoping I’m not going backwards again. In context ↗
  • At worst: ModerateI did find on my darkest days forcing myself to just get up and move my body or go outside helped…little bit each time. In context ↗
  • Now: Much betterI’m WAY better but then get these set backs In context ↗
  • Began after: another virusA couple years ago I got extremely sick after influenza A and strep also had had Covid. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Dusk 46046 got extremely sick a couple of years ago after influenza A and strep, along with Covid, and had POTS-like symptoms. Cutting out gluten, dairy and sugar and eating whole foods helped a lot, and they were much better by August 2024, though setbacks continued. A recent crash brought anxiety, chills, tiredness and nausea after coffee, wine and chocolate.

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What they tried

Also tried

Forcing myself to just get up and move my body or go outside· Helpedholistic chiropractor who does muscle testing· Helpedsome supplements· Not said
Their words about each treatment
  • Cutting out gluten, dairy and sugar / whole-foods diet · HelpedI found gluten, dairy and sugar were big factors. I ate extremely clean Whole Foods…helped a lot. In context ↗
  • Forcing myself to just get up and move my body or go outside · Helpedforcing myself to just get up and move my body or go outside helped…little bit each time In context ↗
  • holistic chiropractor who does muscle testing · HelpedI also found a holistic chiropractor who does muscle testing so she helped with some supplements my body needed. In context ↗
  • some supplements · Not saidshe helped with some supplements my body needed In context ↗

Approaches: Diet

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
a couple years agoextremely sick after influenza A and strep, also had CovidA couple years ago I got extremely sick after influenza A and strep also had had Covid. In context ↗Moderate
by 2024much better after cutting out gluten, dairy and sugar and eating whole foodsI ate extremely clean Whole Foods…helped a lot. In context ↗Mild
2024-08-21crashed after coffee on an empty stomach, red wine and chocolateI felt as if I just crashed today. Very cold, tired, nauseous. In context ↗Mild
2024-08-21overall much better but still gets setbacksI’m WAY better but then get these set backs In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiahad alot of symptoms that sounded like Pots In context ↗
  • Anxiety & low moodToday it caused me feeling really anxious. In context ↗
  • Temperature regulationVery cold, tired, nauseous. In context ↗

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