Long COVID with panic attacks and food reactions, somewhat better avoiding gluten/dairy
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 9 months
- Last post
- Oct 2022
In their words
- Condition: Long COVID
I am a 5 mo long haulger
In context ↗ - At worst: Moderate
I have 98% days (only because I get more tired in the evening) then I have 50% days
In context ↗ - Now: Somewhat better
overall I’d say yes everyday I’m getting better just very very slowly
In context ↗ - Began after: COVID
2 weeks after covid thought I was done and had MASSIVE panic attack.
Read from 36 of their posts and comments; links to the 22 this page draws on
Summary
Tulip 23835 got long COVID around January 2022, with panic attacks, blurry vision, food reactions and low blood pressure. By five months they rated themselves about 75% of normal, alternating good and bad days, after avoiding gluten, sugar and dairy. A few days of Claritin was followed by a relapse. At nine months they said they were still improving very slowly but could not eat many foods or take supplements.
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What they tried
What they credit
Also tried
Their words about each treatment
- B-complex · Worse
I tried the b complex again a month later and I felt like complete crap it only lasted a few days... Then 3 months tried again and that flare lasted about 2-3 weeks
In context ↗ - steroid · Not said
I was given a steroid right off and it may have helped. I took it for 5 days and after that my gallbladder went crazy.
In context ↗ - Low Histamine diet · Helped
It has helped me a ton. ... Low Histamine and nothing processed.
- whole foods diet avoiding gluten, sugar and dairy · Helped
I eat whole foods and avoid glutton, sugar and dairy. I am far better now than 2 months ago.
In context ↗ - Xanax · Helped
Honestly anxiety meds got me through the worst part.
In context ↗ - B12 · Worse
I am having trouble with B12 also.... sent me on a emotional roller coaster
In context ↗ - Claritin · Worse
I stopped it today... I wasn't doing well on the Claritin
In context ↗ - Refresh eye drops · Helped
I started using refresh eye drops but they don’t help with the vision just the itchy.
In context ↗ - deep breathing · Helped
Try deep breathing and maybe some lyphatic drainage exercises. ... I find them helpful as I recover.
In context ↗ - salt · Helped
I am still struggling with low blood pressure but I can slowly add more salt now so it is helping.
In context ↗ - energy healers · Helped a lot
I see energy healers also. It helps me a ton.
In context ↗ - IF fasting (16/8) · Helped
I don’t do full fasts only 16/8 and it seems to help. I’m slowly getting better.
In context ↗ - Tom’s protocol · Helped a lot
I love Tom’s protocol. It has helped me so much!
In context ↗ - red meat and grass fed butter · Helped
This finally leveled out for me after adding back in red meat and grass fed butter.
In context ↗ - Extended water fasting (3+ days) · Worse
I can't do prolonged fast sadly because my body does not like it.
In context ↗
Approaches: Alternative therapies · Benzodiazepines · Diet · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | COVID-19 infection, panic attacks began a few days laterThis is what happened to me. I was fine for a few days and then bam panic attacks started.In context ↗ | Not stated | |
| months 2-3 | worst stretch of the illness with frequent bad daysI am def better then I was through months 2-3.In context ↗ | Moderate | |
| 2022-06-15 | about 75% of normal, alternating 98% and 50% daysI guess 75% and one week from 5 months. I have 98% daysIn context ↗ | Mild | |
| 2022-07-05 | felt massively relapsed while taking Claritintoday I feel like I massivly relapsedIn context ↗ | Mild | Loratadine (Claritin) |
| 2022-08-14 | holding weight again after seven monthsI am finally holding onto my weight again after 7 months.In context ↗ | Mild | |
| 2022-10-31 | still improving very slowly, still limited diet and no supplementseveryday I’m getting better just very very slowlyIn context ↗ | Mild |
Adverse events
- Corticosteroid pulses“I was given a steroid right off and it may have helped. I took it for 5 days and after that my gallbladder went crazy.” In context ↗ Other
- Vitamin B complex“My lung fullness resolved after I stopped taking supplements. ... I tried to take it again and alas the SOB came back.” In context ↗ Made symptoms worse
- Vitamin B12“I am having trouble with B12 also.... sent me on a emotional roller coaster” In context ↗ Mood or psychiatric effects
- Loratadine (Claritin)“now I think Claratin is doing the same thing ugh.” In context ↗ Mood or psychiatric effects
- Vitamin B complex“I tried the b complex again a month later and I felt like complete crap it only lasted a few days... Then 3 months tried again and that flare lasted about 2-3 weeks” In context ↗ Made symptoms worse
- Loratadine (Claritin)“I stopped it today... I only was taking it 3 days ... I wasn't doing well on the Claritin” In context ↗ Side effects
- Loratadine (Claritin)“I had the worst headache I have ever had the other day and took some for 3 days and when I stopped, I felt absolutely awful.” In context ↗ Withdrawal problems
- Extended water fasting (3+ days)“I can't do prolonged fast sadly because my body does not like it.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Tinnitus
Mines getting better then it was for sure.
In context ↗ - Anxiety & low mood
Anxiety is lower now but still here 4 months out
In context ↗ - Vision problems
Blurry vision and my eyes get scratchy.
In context ↗ - Gut problems
Still can’t eat much of anything without a reaction.
In context ↗ - Pain & fibromyalgia
Random muscle aches ... Back aches
In context ↗ - Temperature regulation
Tire easily. Heat intolerance.
In context ↗ - Muscle weakness
My biggest hurdle is eating and weakness because I can't eat much.
In context ↗ - POTS & dysautonomia
I am still struggling with low blood pressure but I can slowly add more salt now so it is helping.
In context ↗ - Mast cell (MCAS) & allergies
I’m on a very limiting diet because of reactions
In context ↗ - Headaches & migraine
I had the worst headache I have ever had the other day
In context ↗ - Breathlessness
My lung fullness resolved after I stopped taking supplements.
In context ↗
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