ME/CFS
Outcome unclear
ME/CFS with nerve pain, migraines, tremor and cravings, trying amitriptyline and Botox
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
reddit.com/r/cfs/comments/1b9vvge
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Posting in r/cfs in 2024, Heron 24711 reported nerve pain in the legs, migraines, a neck tremor and alcohol cravings. Amitriptyline helped the nerve pain but added jaw and neck muscle tension, and duloxetine gave two weeks of unusual energy before leaving them more tired. Botox for the tremor also stopped the migraines, amisulpride cleared depersonalisation and kratom ended the alcohol cravings and eased pain.
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What they tried
Also tried
Their words about each treatment
- kratom · Helped
Try kratom. Stopped all my alcohol cravings, gives pain relief and gives energy.
In context ↗ - amitriptyline · Helped
Amitriptiline did a lot for nerve pain which I have in my legs but for me it gave me extra muscle tension in my jaw and neck
In context ↗ - cymbalta · Helped
I am on cymbalta only 3 weeks or so and the first 2 weeks I had insane energy but now I feel more tired than usual.
In context ↗ - Botox · Helped
I have Botox in my neck for tremor and it gets rid of migraines as well
In context ↗ - amisulpride · Helped
For me it’s worse cause it cause DPDR. Entire surrounding becomes fake. Luckily amisulpride fixed that issue.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2024-02-27 | kratom stopped alcohol cravings, eased pain and gave energyStopped all my alcohol cravings, gives pain relief and gives energy.In context ↗ |
| March 2024 | first two weeks on duloxetine brought insane energyI am on cymbalta only 3 weeks or so and the first 2 weeks I had insane energyIn context ↗ |
| 2024-03-20 | energy boost faded and felt more tired than usualnow I feel more tired than usualIn context ↗ |
| 2024-08-25 | Botox in neck for tremor also stopped migrainesI have Botox in my neck for tremor and it gets rid of migraines as wellIn context ↗ |
| 2024-08-25 | amisulpride fixed depersonalisation/derealisationLuckily amisulpride fixed that issue.In context ↗ |
Adverse events
- Amitriptyline (Elavil)“it gave me extra muscle tension in my jaw and neck which didn’t seem to go away” In context ↗ Side effects
- Duloxetine (Cymbalta)“the first 2 weeks I had insane energy but now I feel more tired than usual” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
Amitriptiline did a lot for nerve pain which I have in my legs
In context ↗ - Headaches & migraine
it gets rid of migraines as well
In context ↗