ME/CFS
Mild → no benefit
Constant brain fog and exhaustion, no better with salt, water and exercise
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Apr 2021
In their words
- Condition: ME/CFS
he said I have a mild version of this condition called POTS and chronic fatigue syndrome.
In context ↗ - At worst: Mild
he said I have a mild version of this condition called POTS and chronic fatigue syndrome.
In context ↗ - Now: No benefit
When I do what I'm told, the POTS symptoms get much better and the CFS symptoms stay the same/get worse.
In context ↗
Summary
An Australian high school junior was told by a cardiologist they had a mild version of POTS and chronic fatigue syndrome, though they were unsure of the exact diagnosis. They had constant brain fog and exhaustion, had stayed in bed all day at least once, and their schoolwork was slipping. Salt, 3L of water a day and leg and abdominal exercises eased the POTS symptoms but did nothing for the fatigue, which sometimes worsened when they did the recommendations.
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What they tried
Their words about each treatment
- salt and water · Helped
When I do what I'm told, the POTS symptoms get much better and the CFS symptoms stay the same/get worse.
In context ↗ - exercise my legs and abs · Worse
the POTS symptoms get much better and the CFS symptoms stay the same/get worse
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2021-04-15 | exhausted, in bed all day, constant brain fog, schoolwork failingended up staying in bed/sleeping all dayIn context ↗ |
| 2021-04-16 | POTS lifestyle changes helped POTS but not the fatiguethe POTS symptoms get much better and the CFS symptoms stay the same/get worseIn context ↗ |
Adverse events
- Everyday exercise and activity“When I do what I'm told, the POTS symptoms get much better and the CFS symptoms stay the same/get worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
I have brain fog constantly and am really confused and forgetful.
In context ↗ - POTS & dysautonomia
he said I have a mild version of this condition called POTS
In context ↗ - Sleep problems
I woke up today feeling exhausted as normal, and ended up staying in bed/sleeping all day.
In context ↗ - Post-exertional malaise
When I do what I'm told, the POTS symptoms get much better and the CFS symptoms stay the same/get worse.
In context ↗