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ME/CFS Moderate → no benefit

ME/CFS with suicidal feelings and no useful support; prescribed drugs did nothing

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Jan 2018
In their words
  • Condition: ME/CFSCan lack of activity make cfs worse? In context ↗
  • At worst: ModerateI'm finding I'm unable to go for short walks down to my local grocery shop which is about 800 meters away. In context ↗
  • Now: No benefitthe emotional payback is far worse than when I used to do them on a regular basis, my anxiety is also worse. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Bluebell 76722, a user on r/cfs, wrote in late 2017 that they felt suicidal, had no useful support, having been under mental health services since age 14. By January 2018 they had stopped their regular walks of about 800 metres to the local shop; concentration improved but post-exertional malaise and anxiety got worse. They mentioned being prescribed drugs that didn't really do anything.

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What they tried

Their words about each treatment
  • drug's · No changealso prescribe drug's that don't really do anything In context ↗
  • regular walks down to my local grocery shop · Not saidI stopped doing them as frequently about six months ago and since then the payback I get (post exertional malaise) has been worse In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisethe payback I get (post exertional malaise) has been worse when I do go for the occasional walks In context ↗
  • Anxiety & low moodmy anxiety is also worse In context ↗
  • Brain fogMy cognitive abilities such as my ability to concentrate on tasks is better overall since not going for the regular walks In context ↗

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