Long COVID
Moderate → no benefitIll for 1 year
Still mostly housebound with long COVID, near-constant headaches and light sensitivity
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 1 year
- Last post
- Oct 2026
In their words
- At worst: Moderate
used to climb hard, now mostly housebound
In context ↗ - Now: No benefit
I try to stay in bed or sit most of the day, but my emotions are all over the place
In context ↗ - Began after: COVID
Assumed long COVID
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 28-year-old man became ill after an assumed COVID infection in September 2025, with a February 2026 cold and two days of climbing triggering a two-week crash. Crashes of about ten days recurred through spring and summer, and a ten-day August trip set off his worst, lasting a month. He quit both part-time jobs and is now mostly housebound with near-constant headaches, light and noise sensitivity, palpitations and pain, and often feels hopeless.
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What they tried
Also tried
Their words about each treatment
- antibiotics · Not said
Got antibiotics.
In context ↗ - LDN · Not said
LDN, slowly titrating up, currently at 2mg.
In context ↗ - Clonidine · Helped
Clonidine for the heart racing. It’s helped smooth things out in the past, but my RHR has been high recently.
In context ↗ - Gepants · Not said
Gepants for migraine prevention.
In context ↗ - Rizatriptan · Helped
Rizatriptan helps a lot during crash headaches.
In context ↗ - Tylenol · Not said
months of near-daily Tylenol and Celebrex
In context ↗ - Pacing · No change
Pacing, and tracking HRV and resting heart rate, but I have no idea what causes crashes these days.
In context ↗ - tracking HRV and resting heart rate · Not said
tracking HRV and resting heart rate
In context ↗ - Nicotine patches · Worse
Nicotine patches. They made my heart palpitations and anxiety way worse.
In context ↗ - NAC · No change
NAC (I'm still taking it but haven't seen much benefit).
In context ↗ - PT pushing intensity · Worse
My PT means well but keeps pushing intensity ... I crashed 3 days after one session
In context ↗ - NSAIDs (unspecified) · Not said
I can’t take most NSAIDs because I’m anaphylactic to them.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Sept 2025 | four-week infection, assumed COVID; recovered to full activity afterSept 2025: a four weeklong infection (fatigue, headache, sore throat, drainage).In context ↗ | Mild |
| Feb 2026 | cold, then crashed for about two weeks after climbing two days in a rowFeb 2026: another cold-ish thing, maybe Covid again. Felt better, climbed two days in a row, and crashed hard for about two weeks.In context ↗ | Mild |
| spring and summer 2026 | about four crashes of roughly 10 days each, usually set off by climbingI had about four crashes of roughly 10 days each through spring and summer, usually set off by climbingIn context ↗ | Mild |
| August 2026 | ten day trip set off the worst crash yet, lasting about a monthIn August, a ten day trip set off the worst one yet. It lasted about a month.In context ↗ | Severe |
| October 2026 | quit both part-time jobs and most activity; mostly housebound, in bed or sitting most of the dayI try to stay in bed or sit most of the dayIn context ↗ | Moderate |
Adverse events
- Physical therapy / physiotherapy“I crashed 3 days after one session” In context ↗ Made symptoms worse
- NSAIDs (unspecified)“I can’t take most NSAIDs because I’m anaphylactic to them.” In context ↗ Allergic reaction / anaphylaxis
- Nicotine patches“They made my heart palpitations and anxiety way worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
I had about four crashes of roughly 10 days each through spring and summer, usually set off by climbing
In context ↗ - Headaches & migraine
Near-constant headaches and migraines.
In context ↗ - Light & noise sensitivity
Light and noise sensitivity
In context ↗ - Heart symptoms & palpitations
Heart racing and palpitations.
In context ↗ - Pain & fibromyalgia
Diffuse joint, bone, and body aches.
In context ↗ - POTS & dysautonomia
Dizziness that I think may be caused by meds.
In context ↗ - Anxiety & low mood
I feel hopeless a lot
In context ↗