Mostly bedridden with ME/CFS and POTS, some symptoms 80-90% better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 months
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
this profound fatique..i have been housebound, mostly bedridden due to the exhaustion and lack of energy.
In context ↗ - At worst: Severe
i have been housebound, mostly bedridden due to the exhaustion and lack of energy.
In context ↗ - Now: Somewhat better
Some of my symptoms got better but this fatique is scaring me.
In context ↗
Summary
Stone 89533 fell ill about five months before their latest post with sudden panic attacks, severe anxiety, insomnia, loss of appetite and nausea. Those symptoms improved by 80-90% but they developed POTS with profound fatigue and mid-back pain, becoming housebound and mostly bedridden. They crashed on every supplement they tried, and were still exhausted and frightened at their last post.
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What they tried
Also tried
Their words about each treatment
- every single supplement · Worse
I crash on every single supplement so I cant even take anything to help with healing
In context ↗ - sun in the morning · Not said
I do a lot of natural stuff, sun in the morning
In context ↗ - deep breating · Not said
deep breating, nervous system exercises
In context ↗ - nervous system exercises · Not said
nervous system exercises, no screen before bed
In context ↗ - no screen before bed · Not said
no screen before bed, try to relax as much as I can
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about April 2026 | sudden panic attacks, severe anxiety, insomnia, loss of appetite, nausea and severe fatigue5 months ago I started having sudden punic attacks, severe anxiety, insomnia, loss of appetite, severe fatiqueIn context ↗ | Moderate |
| August 2026 | became housebound and mostly bedridden with profound fatigue and mid back pain after developing POTSi have been housebound, mostly bedridden due to the exhaustion and lack of energyIn context ↗ | Severe |
| September 2026 | some symptoms improved but profound fatigue persistedSome of my symptoms got better but this fatique is scaring meIn context ↗ | Not stated |
Adverse events
- “I crash on every single supplement so I cant even take anything to help with healing” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I cry every single day, grieving my old life
In context ↗ - Sleep problems
My sleep has gotten so much better over the last month
In context ↗ - Gut problems
lack of appetite, nauseas all day
In context ↗ - POTS & dysautonomia
in the mean time I developed POTS
In context ↗ - Pain & fibromyalgia
It almost always comes with mid back pain
In context ↗