ME/CFS limiting them to basic self-care, now much better with iron
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
Since 2020 I've experienced chronic fatigue and later long COVID.
In context ↗ - At worst: Moderate
For ages I couldn't do much except look after my basic needs and hand-form pottery.
In context ↗ - Now: Much better
I'm currently working on the last little bit, mild chest tightness and mild fatigue
In context ↗ - Began after: another virus
then at the end of the year I got the sore throat again for a few days and my chronic fatigue started.
In context ↗
Summary
They began having chronic fatigue in 2020 after a recurring sore throat and cough and could do little beyond basic self-care and pottery. Iron helped them improve slowly, and high-dose vitamin D3 and K2 kept long COVID, which began a year later, in check. Acupuncture let them stop those supplements; Chinese herbal medicine ended their body aches. By February 2025 they still had mild chest tightness and fatigue but felt almost there.
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What they tried
What they credit
Their words about each treatment
- iron supplements · Helped
I took heaps of iron and that helped me slowly improve ... the iron supplements helped a lot
In context ↗ - high dose vitamin d3 · Helped
doing better on high dose vitamin d3 and k2
In context ↗ - acupuncture · Helped
Others didn't really help but this one got me off the d3 and k2 without getting covid again
In context ↗ - traditional Chinese herbal doctor · Helped
another traditional Chinese herbal doctor helped me so that I don't get body aches anymore
In context ↗ - breath-work practice · Not said
If all I could do was breathe, then I would focus on my breath-work practice
In context ↗
Approaches: Alternative therapies · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2020 | chronic fatigue began after a recurring sore throatthen at the end of the year I got the sore throat again for a few days and my chronic fatigue started.In context ↗ | |
| 2020-2021 | could do little beyond basic needs and potteryFor ages I couldn't do much except look after my basic needs and hand-form pottery.In context ↗ | |
| — | iron supplements helped them slowly improveI took heaps of iron and that helped me slowly improve even though my doctor said my levels weren't that low, the iron supplements helped a lot.In context ↗ | Iron infusion / ferritin repletion |
| a year later | got COVID, then long COVID for three yearsA year later I got COVID and then long COVID for the next three yearsIn context ↗ | |
| 12 mo | did better on high-dose vitamin D3 and K2doing better on high dose vitamin d3 and k2. If I didn't take those I would get bad COVID symptoms again like i was really sick.In context ↗ | Vitamin D and sun exposure |
| 4 y | acupuncture got them off the D3 and K2 without getting COVID againI only was able to stop those supplements after an acupuncture session with the best acupuncturist I've found.In context ↗ | |
| 4.2 y | Chinese herbal medicine stopped their body achesanother traditional Chinese herbal doctor helped me so that I don't get body aches anymoreIn context ↗ | |
| 2025-02-10 | almost there, only mild chest tightness and fatigue leftI'm currently working on the last little bit, mild chest tightness and mild fatigue but I'm hopeful if I go back to the acupuncturist I can get thereIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
I got a sore throat and cough and the cough took ages to go away and then the sore throat stayed in a mild form for 4 years.
In context ↗ - Pain & fibromyalgia
I still get some muscle aches and fatigue
In context ↗ - Heart symptoms & palpitations
mild chest tightness
In context ↗
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