ME/CFS
Outcome unclear
ME/CFS with stomach problems, insomnia and depression; low-FODMAP diet helped stomach
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jan 2021
In their words
- Condition: ME/CFS
I had huge problems with food way before I was even ill with CFS
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with CFS who reported long-standing food and stomach problems, insomnia and depression; the posts give no onset date or level of function. A low-FODMAP elimination diet helped their stomach issues, and they rarely had them afterwards, though still avoiding high-FODMAP foods. Amitriptyline, taken before the CFS diagnosis for an unrelated problem, worsened their insomnia and depression and caused vivid nightmares.
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What they tried
Their words about each treatment
- low fodmap diet · Helped
This really helped me when I was ill with stomach issues. I can’t eat any of the bad, high fodmap foods now but I rarely have stomach issues now.
In context ↗ - amitriptyline · Worse
I hated amitriptyline. I don’t remember my specific dose but it was much lower than 50mg. It worsened my insomnia
In context ↗ - Flu vaccine · Not said
I got my first one this flu season and didn’t have any reaction besides the typical achy arm after
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | became ill with CFS/MEway before I was even ill with CFSIn context ↗ | |
| — | low-FODMAP diet cleared up stomach issuesThis really helped me when I was ill with stomach issues. I can’t eat any of the bad, high fodmap foods now but I rarely have stomach issues now.In context ↗ | Low-FODMAP diet |
| 2021-01-27 | first flu shot, only achy armI got my first one this flu season and didn’t have any reaction besides the typical achy arm afterIn context ↗ |
Adverse events
- Amitriptyline (Elavil)“I hated amitriptyline. I don’t remember my specific dose but it was much lower than 50mg. It worsened my insomnia” In context ↗ Insomnia from treatment
- Amitriptyline (Elavil)“I either had extremely vivid nightmares every night, or dreams so realistic I confused them with reality” In context ↗ Mood or psychiatric effects
- Amitriptyline (Elavil)“It also worsened my mood and I felt quite depressed.” In context ↗ Mood or psychiatric effects
- Amitriptyline (Elavil)“When I drank it made me aggressive, which I had never been before.” In context ↗ Mood or psychiatric effects
- Flu vaccine“I got my first one this flu season and didn’t have any reaction besides the typical achy arm after” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
This really helped me when I was ill with stomach issues
In context ↗ - Sleep problems
It worsened my insomnia
In context ↗ - Anxiety & low mood
It also worsened my depression and I had no drive for life.
In context ↗ - Pain & fibromyalgia
I also didn’t see an improvement in my pain either
In context ↗