ME/CFS
Severe → somewhat betterIll 8 years before improving or writing
Almost bedridden with ME/CFS, now somewhat better though cognition declined badly
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 8 years
- Last post
- Sep 2019
In their words
- Condition: ME/CFS
I've been sick for 8 years now and while my physical symptoms have improved to the point to be considered mild on the scale of cfs severity
In context ↗ - At worst: Severe
I used to be almost bedridden with a somewhat functional brain
In context ↗ - Now: Somewhat better
my physical symptoms have improved to the point to be considered mild on the scale of cfs severity, my brain has declined soo badly
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Trail 34661 had been ill for eight years by 2019, once almost bedridden with a somewhat functional brain. Physical symptoms had improved to mild on the CFS severity scale, but cognition had declined badly, described as feeling like dementia. They worried that mitochondrial damage might become permanent and asked whether recovery is possible after so long.
Ask Miruvor AI
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2011 | became ill; at worst almost bedriddenI used to be almost bedridden with a somewhat functional brainIn context ↗ | Severe |
| 2019-09-18 | physical symptoms mild but brain declined badlymy physical symptoms have improved to the point to be considered mild on the scale of cfs severity, my brain has declined soo badlyIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
my brain has declined soo badly, it's so scary
In context ↗ - Brain fog
I legitimately feel like I have dementia
In context ↗