ME/CFS
Mild → somewhat betterIll 1 year before improving or writing
A year of fatigue, brain fog and severe anxiety with ME/CFS, now somewhat better
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Mar 2024
In their words
- Condition: ME/CFS
It’s been a year since I think I’ve had CFS
In context ↗ - At worst: Mild
I scaled back already on work but I’ve been doing stuff
In context ↗ - Now: Somewhat better
even though I think I’m getting better again i just don’t know this feel debilitating
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Stone 11206 described almost a year of fatigue, heavy thighs, brain fog, headaches, sleep problems and severe anxiety, unsure whether it was CFS or their OCD. They had got almost back to normal, then a severe OCD episode in early 2024 brought a major setback. By their last post they thought they were improving again, though they still felt debilitated and feared getting worse.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- pacing · Not said
I’m pacing but I just want to know if there’s a chance of me improving again?
In context ↗ - Caffeine · Helped
Caffeine and distractions work but im just terrified.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023-04-01 | already ill and scaling back on work while still doing thingsI scaled back already on work but I’ve been doing stuff cause it makes me feel better at least I think so I’m not sure !!In context ↗ | Mild |
| — | got almost back to completely normal over a year of steady improvementI was solidly improving for like a year ... Got almost back to completely normal | Near normal |
| 2024-03 | major setback after a severe OCD episodeI feel like I’ve had a major set back after a extreme ocd episodeIn context ↗ | Mild |
| 2024-03-20 | thinks they are getting better again but still feel debilitatedI think I’m getting better again i just don’t know this feel debilitatingIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
thighs feels heavy
In context ↗ - Headaches & migraine
mild congestion headaches
In context ↗ - Anxiety & low mood
super anxious and depressed
In context ↗ - Sleep problems
plus sleep issues
In context ↗