ME/CFS
Mild → no benefitIll for 2.5 years
Constant worsening leg pain with ME/CFS, no recovery after a two-week break
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 2.5 years
- Last post
- Jan 2024
In their words
- Condition: ME/CFS
I got formally diagnosed with CFS about a month ago, although I suspected I had something similar for a while before then.
In context ↗ - At worst: Mild
I've been pushing myself to go to work for about 4 months now, and although I can work from home some days
In context ↗ - Now: No benefit
everything just seems to be getting worse and worse and never better
In context ↗ - Began after: nothing they could name
It was never this bad when I was in 1st/2nd year, although I barely did any work
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 21-year-old UK student on an industrial placement was diagnosed with CFS in December 2023, after symptoms worsened during the placement; they said things were not this bad in their first or second year of university. After about four months of pushing through work, leg pain from overexertion was constant and worsening, and a two-week Christmas break brought no recovery. They considered quitting their job to rest, fearing loss of income and student loans.
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What they tried
Also tried
Their words about each treatment
- rest · No change
didn't really recover, even with lots of rest and taking it easy
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 1st/2nd year of university | symptoms began during university, manageable with 1-2 hours of work a dayIt was never this bad when I was in 1st/2nd year, although I barely did any work (still got good grades from 1/2 hours every day).In context ↗ | Mild |
| 2024-01-03 | four months of pushing through an industrial placement; constant leg pain that did not ease over a two-week breakeverything just seems to be getting worse and worse and never better ... and it's pretty much 24/7 nowIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
My legs are usually where I get pain from overexertion and it's pretty much 24/7 now.
In context ↗ - Pain & fibromyalgia
The pain continued all through the break and is worse again now I'm back at work.
In context ↗ - Anxiety & low mood
I'm scared of pushing my limit so much that it permanently lowers a lot
In context ↗