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ME/CFS Somewhat better

ME/CFS with heart-rate instability and PEM flares, somewhat better on EGCG and probiotics

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Oct 2026
In their words
  • Condition: ME/CFSI have less flare ups and PEM since I started on it a few months ago In context ↗
  • Now: Somewhat betterMy heartrate stability has increased and I have less flare ups and PEM since I started on it a few months ago. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Bluebell 64256, who has CFS, found that high-dose EGCG prescribed by a dietician improved heart-rate stability and reduced flare-ups and PEM over a few months. Taking probiotics and increasing fibre and protein intake also improved symptoms. The posts do not say how severely ill they were, how long they had been ill, or what caused it.

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What they tried

Also tried

upping fiber and protein intake· Helped
Their words about each treatment
  • EGCG · HelpedMy heartrate stability has increased and I have less flare ups and PEM since I started on it a few months ago. In context ↗
  • probiotics · HelpedMy symptoms always improve when taking probiotics and upping my fiber and protein intake. In context ↗

Approaches: Supplements

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2026-03-31started high-dose EGCG prescribed by a dietician; less PEM and fewer flare-upsMy heartrate stability has increased and I have less flare ups and PEM since I started on it a few months ago. In context ↗
2026-10-22symptoms improve with probiotics and more fibre and proteinMy symptoms always improve when taking probiotics and upping my fiber and protein intake. In context ↗Probiotics and fermented foods

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI have less flare ups and PEM since I started on it a few months ago In context ↗
  • Heart symptoms & palpitationsMy heartrate stability has increased In context ↗

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